Search This Blog

Sunday, August 9, 2020

The Perceptive Intuit

When I was in jr. high and high school the last day was yearbook signing. You would pass your yearbook around and people would write nice things and sign their name. I am not sure if this is still a thing. I wish it were everywhere the way it was in my high school, because then, if ever you need a reminder of who you really are, you can go back to your high school yearbook and read what people wrote about you. 

I don't know how I ever became as broken as I was when so many great people liked me as well as they did in high school. 

"I love to talk to you because you are so thoughtful and sincere," were the exact words from one casual friend but also a common theme in many of the comments. 

I am grateful for those friends and classmates.

I was also told, by boys, that I was attractive more times than I ever would have guessed... And this makes me also wonder why my perceptions of my attractiveness were so low. 

Perceptions are weird. And how we perceive ourselves can be so distorted by so many factors. How we perceive others can also be. 

...and maybe this is a segue into the thoughts I have had about TBI and the silver linings of it...

"You are very intuitive," says Dr. He, and I am, but I don't think he fully understood what was happening and why. 

The very condition that brought me to him is what is catching him in his games, deception and/or the mistakes of a broken man who has lost objectivity. 

I am intelligent. I always have been. I have really good genes for intellect. In elementary school I was invited to be in a "gifted and talented" class for accelerated learners. I felt like it was a good thing for me because school was very easy and I was rarely challenged in the regular classroom. The program I attended was from 4th to 6th grade, after that we were are dispersed back into our regular boundary junior high schools. 

Midway through my 7th grade year is when I took that first blow to my head. The one that we know bled about the size of a quarter on the left side as seen by CT scan. 

The rest of that school year I struggled in school. Truthfully, I was a bit too out of it to even know that I was struggling. However I do know school most certainly became more challenging in ways and more than I realized then. However, since I still had above average intelligence, after that school year, people did not catch on to my issues and I was not given any form of added assistance. I had to figure out a lot of things on my own. Good thing I am smart.

Actually I am not sure what it is in me that helped me figure things out as well as I did on my own but according to the documented observations of my peers as found in my yearbooks, I was "determined." Which is so cool that they noticed that about me because I didn't. It is just how I was. I also earned the nickname of Tenacious at one point, so I must have been.

So being determined and tenacious I learned some pretty good tricks and one of those was intuition.

A theory: After TBI my brain did not work the same. It couldn't since part of it was gone. So I had to adapt and my brain had to find and establish new neuro-pathways. I believe intuition was one of those.  I often could not remember what I needed when I needed it -like on tests- but I found that if I relaxed my mind and went with my gut, more often than not I would get the correct answer. So even though I could not recall the information the same I could trust my intuition to help me. I am not sure when exactly it clicked but it is something that I realized and then utilized. And I still do.

Another silver lining to my broken brain: 

Remember that I have said, "I know what it is like to be me and not me at the same time" And that TBI has effected mood stability. 

I also learned from sources like the book, "A Parents Guide to Gifted Children" that highly intelligent people can be more sensitive to nuances and injustices. I was in that boat even before the TBI. 

Add that to TBI locations that effect mood stability, language recall, impulse control, and other such things, and you get a person who can be rather psychologically sensitive. 

I'll try to explain.

We are all influenced by our surroundings and situations. We are influenced by all that we are exposed and subjected to. Whether it be school, television, family, whatever. Sometimes we call it "culture" sometimes we call it "entertainment" or "religion" etc. Sometimes we want to believe that we are not effected at all. But I am effected much more obviously due to those areas of my brain being damaged. Thus my polarity is much more obvious. I also have a healthy imagination and I may be a bit of a visionary idealist. So when I watch a feel good movie I can be moved to mania, or rather hypo-mania. And if I am subjected to bad things it is very clear, very fast, how bad they really are because of how they effect me. My mind and body will rebel and repel and/or I will go dark real fast. It is then very easy for me to see that things like pornography are not just wrong but evil. 

Because I have to be so much more careful about what I allow in, in order to maintain balance, I actually have a huge advantage to understanding and knowing when external things are out of balance and unhealthy. 

-I believe this is why I am so frequently regarded as perceptive and intuitive. -

It is much easier for me to avoid "slippery slopes" and the sneaky subliminals that we are bombarded with everyday. Ulterior motives, smoke in the glass, contradictions, hypocrisies, and conspiracies become much easier to spot simply because of how my body very obviously responds. I'll spot them and point them out before I even know I am. 

Yet, because I know what it is like to be me and not me at the same time, I think I am much more forgiving than people understand. I am also much more open to conversation about it, and not nearly as intimidating as my emotions might project. I can be passionately angry or excited and that seems to scare people, yet I am so often the bridge spanning the gap because I can calm and connect both sides with forgiveness and compassion. Maybe because I know how desperately we all need that. 

Dear Intermountain Neuroscience Institute,

Try me. 

Step out onto this bridge. You have built and prepared your defenses well so you are already anchored with ropes and harnesses. You have the wings and the power to use them, you have the safety nets, emergency parachutes, and life preservers in the event that a bridge is not solid and falls out beneath you. You have nothing to fear except fear itself so stop hiding, stop shaming, and step out. Be what you proclaim and profess to be. 

There are so many people that need someone like you to be the heroes people like you are not being because of irrational fears and misconceptions. Please be the heroes you are meant to be not the cowards and deceivers too many in your positions of power currently are. 

You have nothing to lose 

but all of us have a whole lot to gain.


Wednesday, July 29, 2020

In the Arms of an Angel

Sometimes still, emotions overwhelm me. I try not to burden my kids with them but I also don't try to hide them and pretend like I am okay. That burdens them in an entirely different way that they don't understand and may blame themselves for. So when I am hit they often see it.
Sometimes we talk about it. And sometimes that is good because they are so sweet, they have insight, and it helps them knowing they are helping someone else.
Today, I was once again hit hard by the realities... and I swear they have hit me a thousand times in a thousand different ways ...leading me to believe I've already got it solved and have worked through all the possible emotions, yet I am still being hit in knew ways even by old revelations. Part of the reason for this is that now I am actually strong enough to see and accept the truths and realities of what was happening and how I was being handled.
Today I had a conversation with my son. I am so sorry and sickened by the feelings I had for a man that broke me and then set me up.
I am sickened by the reality that I was trying to protect him when he was actually doing things to intentionally set me up and make me look bad. When he held all the cards and had all the power he built a fictitious illusion of me and then made sure to document it in my medical records so that later he could accuse me of stalking when I was actually trying to get help while trying to protect him...
My son.
My 14 year old son.
What a beautiful person.
I share a bit of why I am breaking into tears, again, today after having to look through my records in an attempt to get things sorted and fixed -which is proving to be an impossible task because they hold all of the card and they have all of the power.
My son calmly and intelligently tells me about how power hungry and corrupt people can be. He is 14.
We are not overly religious and have stepped back from religion lately. But I am spiritual and I feel concern that I may not be doing a very good job of helping my kids connect with their higher selves, a higher power, and a higher purpose. I mention something about why it is so important to live a Christ centered life, or at least keep him in our hearts.
My son surprises me as he tells me about heaven. He tells me that I will go there automatically because of how I loved and tried to protect those that were causing me harm. He says I have proved myself.
What a beautiful thing to say and the way he did; which was much better then I can and am reiterating. I am so grateful for him. I don't know if he is right and I likely still have plenty of time to progress or digress into either side of my own duality, but on some level I know that he is correct and my very tender heart is taking comfort in knowing that my tenderhearted human peers that have been heartbroken and betrayed by those they love, forgive and try to protect will ultimately find peace and reprieve in the company of the angels that are looking over us and helping us even when we have forgotten them. And in the company of true angels that we already know here, like my son, my daughter, Renée, CP, and so many others...
And today I thank God and Christ for their redeeming grace and for sending Their love to and through my son. And I hope that others may feel that same love coming to and through me because it is meant for them as well.
"Alone we can do so little. Together we can do so much"
-Helen Keller
In the Arms of an Angel - Sarah McLachlan

Ringing Reminders

Sometimes I just wish the ringing in my ear would stop.
Sometimes it does, but only for about 25% of my awake time. I usually can ignore it, but that does not make it go away. I have not been able to associate anything to the times when it stops, like sleep, exercise, etc. it seems to be very random.
And at times when I would like to believe that I am fine and healed, it is like the nagging internal voice of reason constantly reminding me "see, I told you so, I told you there was more going on with your brain than just a concussion."
It annoys me. I want to punch it.
But I'm sure you see why that would not be very helpful.

Saturday, July 25, 2020

Isolation

Isolation is really bad for mental health and yet that is exactly how our communities, society, culture and individuals (and even ourselves) seem to respond to people when they are having mental health problems. 
When will we ever learn? Will we ever learn?
The people of Brazil, at least communities we encountered in Rio, handle it differently and it seems to be much more effective and fair:
https://amicrazy2.blogspot.com/2020/02/redefining-crazy.html

Friday, July 24, 2020

Arguing Both sides part 2

I am fighting my brain today.
And my emotions.
This is why I am saying goodbye to arguing both sides. The laws are stacked too heavily in favor of the medical institutions and providers for the way I was treated to ever be okay.
Especially because the reality of my condition was very difficult to manage and the realities of my decreased abilities are extremely difficult to accept.
Limitations that are so discouraging.
Losses I have to grieve.
...
Maybe that is what today is; grieving.
I'm battling my brain...that feels survivor guilt and the realities of limitations and losses.

"Life is Pain" Says the Dread Pirate Roberts, who happens to be Wesley.

Grief is not a straight path. It is never over when we think it is.
But worse than that is the TBI consequences. The reality of mood instability. The new and added difficulties with focussing. The impatience and irritability even when I am not irritable or impatient. The expectations that I just can't meet. How hard it can be to process new information. How reading has become difficult. Aging beyond my years.
"You do require more sleep" and "even something as simple as bonking your head on the refrigerator door will cause you significant problems"
There is great power in knowing. There is validation and hope that comes with proper diagnosis. But I suppose that does not entirely take away the reality of the problems you face and the losses you have to grieve.
And no-one who has not been through it themselves can ever fully understand the powerful, profound, and unfair effects being terminated and discarded by a therapist due to countertransference has on a person., especially when you are experiencing transference. If this is simply how it is  handled then that is terrible, abusive, and the system needs to be changed.
Follow that with what happened to me and, Nope, there is no more arguing for the other side.  Doing so I am not being fair or kind to myself.
I am a victim whether I like it or not... and I do not like it, nor do I want to accept it. But
Justifying and excusing them only further victimizes me. There was no good reason for it, especially since they were paid to help and protect me.
I will be strong again and I will keep fighting.
But today I am grieving.
And giving credit where credit is due. To me and my kids and my husband
and to others that have helped me out of that bottomless abyss.

Thursday, July 23, 2020

Keep on Keeping on

Yesterday was an easy rough day.
I had physical therapy for my hand at 8:30 am which meant I had to get up at a reasonable time. That is difficult due to medication. Also I did not get to bed early enough nor did I sleep well enough and that did not help. 
Hand physical therapy is always surprisingly exhausting. The myofascial release techniques that Hand Whisperer uses are especially interesting in how I can feel it in my brain. Often my eyelids and head feel heavy and droopy from it. 
Then I got to talk with a parent of a student I work with. It was a good conversation, nothing stressful. 
After that I took my son to his physical therapy appointment. I have developed a casual friendship with one of the ladies that works there so we chatted for a bit. Then I went for a walk/run, while my son was busy with therapy. 
I have not been running as regularly. Mainly because my hip acts up when I do and it bums me out. But yesterday I ran, tackling some hills and while it did feel good the hip did not like it.
Upon returning to collect my son, his therapist gave me an updated and we chatted about that for a bit.
Then it was home and I had intention to get stuff done. 
However, by then, my head was starting to low hurt which means my brain needed a break. 
I debated on what to do for a brain break to settle my head. I considered a nap because that seems to be the most effective but I really don't want to be so reliant on naps and painting sounded satisfying. Knowing that head aches usually require the more effective break to turn things around most efficiently I figured I'd laid down. But I did not fall asleep instantly so I decided it meant I needed to paint.
Unfortunately the mild headache never went away. 
I managed to get things done, chat with a friend and update a sister over the phone, but the more difficult tasks, once again, went undone. 
This is one of the effects of TBI that really bothers me. I cognitively tire out so quickly. And then it becomes even more difficult to process reading, new information, what people are saying, etc. 
I am extremely lucky that I do not have to work a regular job and that I have been able to take time to heal. I am very grateful for how my husband provides for our family. He has carried us in so many ways lately. I feel bad for those who do not have these same luxuries. Yet, it is still quite disgruntling to be faced with just how much of a deficit I am running on these days and is can make it extremely difficult to find the motivation to keep working towards goals and aspirations especially when your efforts now require so much more effort and yet have gone largely unnoticed, very misunderstood, unsupported, and you feel powerless to make changes where you know they really need to happen.
Sooo... here I am again, blogging it out... Or am I procrastinating?
So much in my head, so much that I know, with nowhere to go with it but here. 
And of course this (the last statement) is not entirely true and I will keep working toward changes I wish to see in this weird wild world that we live in. 
And I will keep hoping I might help others in some small way through my honest blogging of the realities we face as we sort our tragedies and traumas in an effort to gain better psychological health.  

Tuesday, July 21, 2020

Arguing Both Sides: Part 1 The Magnificent Masterminds of the Medical Malpractice Model



Even still my solving brain continues. I may be slower than I used to be and maybe others have already figured this out from my story but my stable processing brain -that is still trying to figure out what my responsibilities are, how hard I want to keep working to solve in a way that eases my mind and consciences and helps in an overarching way- and my mind that now craves some level of justice [preferably through reform] has recently had an epiphany.
An epiphany, that looks more like a puzzle that is finally coming together to reveal the secret of the whole picture that was hidden in plain sight within all of the small and scattered individual puzzle pieces.
The epiphany that came when I considered writing a letter myself to the attorney that claims to be representing a few of the IHC individuals and the Neuroscience Institute. 
The Epiphany that told me this would be a bad idea 
and here is why:

That lawyer does not care about me. He, very likely, does not care about them either. He most likely cares about his pay check and probably his ego too, and listening to me in a way that will help me (and them) is not in the best interest of his paycheck. Not only that but -and I may be going out on a limb here- I’m guessing he makes more $ the harder he has to work to defend the medical providers he works for. …

… ?!?!!!!

Flashbacks:

  •   "I could loose my license because of you," says Dr. He but I do not understand because I know I had done nothing to make that true and I know the threat is not coming from me. He could not loose it because of me unless I pursued some serious actions to make that happen and I had not desire or intention to do that ever. It did not make sense. So my possible fallacy was thinking the threat must be from IHC. After all he had also said "you don't know the other side of things."
  • Friend who has been a nurse for IHC for years is explaining their policies and how they are trained, [or conditioned] to handle mistakes if they make them, “If we make a mistake we are not supposed to talk to the person. We have to deny it because of all of the frivolous lawsuits...”
  • Another friend who has worked at a non IHC hospital for years, “… they can’t admit they made a mistake and they are especially not allowed to talk to the patient about it if they did because of all the frivolous lawsuits.”
  • Others who have repeated similar reports of how they are expected to handle mistakes.
  • My discoveries time and time again and being told by attorneys and others about "Torte Reform" and how "the laws are stacked in their favor." Reading the Utah Malpractice Act and seeing just how heavily they really are stacked in their favor and how heavy our politicians have made the Burden of Proof on patients and their families - patients that are already suffering physically and psychologically from conditions that led them to the medical providers in the first place and that the medical providers have then made worse.
  • The many conversations with my Attorney friend in which he has explained that there has been significant studies and research that proves there are significantly less lawsuits when doctors admit they made a mistake and work with the patient to correct the problem.
  • This information, found here https://www.dkowlaw.com/practice-areas/medical-malpractice, that states:
“The American Association for Justice summarizes the findings from key peer-reviewed sources on the extent of medical malpractice and medical errors:
-Some 440,000 patients die every year from preventable medical errors. [Journal of Patient Safety]
-Preventable medical errors cost our country tens of billions of dollars a year. [Institute of Medicine]
-One in three patients who are admitted to the hospital will experience a medical error. [Health Affairs]
-Studies of wrong site, wrong surgery, wrong patient procedures show that “never events” are happening at an alarming rate of up to 40 times per week in U.S. hospitals. [Archives of Surgery]
-Medical negligence lawsuits amount to just one-half of one percent of all health care costs. [Congressional Budget Office]
-Medical negligence cases represent well under 2 percent of all civil cases. [National Center for State Courts]
-Researchers at Harvard University found that 97 percent of cases were meritorious, concluding, “Portraits of a malpractice system that is stricken with frivolous litigation are overblown.” [New England Journal of Medicine]”  I wonder, of those 3% of non-meritorious lawsuits how many won? And how many of the meritorious medical negligence cases how many of those actually won?
  • My thoughts time and time again of, “What exactly have I stumbled onto here?” as the cover ups, mistreatment, and refusals to clarify and talk with me continued despite my best efforts to help them understand I was “just trying to figure out what was going on with my head.”
  •  "they are setting you up" pointed out to me, by family members that work within/for two of The Systems.
  • The warnings Dr. She has given me about “what they will put you through” coupled with her observations of them and me, and her hope that I am strong enough to fight this battle and to seek justice, but her careful and very limited encouragement for going the "legal route."
  • "I have the power to check that box," said by a medical provider as a threat to my friend who had been abused and betrayed and who had already lost so much and not been protected by the Legal System.
  • How people are terrified to be on the wrong side of IHC.
  • Dr. Tangled, who was, "not afraid to report," until it came right down to it and coincidentally after she "poured over my medical records." It is worth noting that one of her own had also misdiagnosed me, even before the Neuroscience Institute had.
  • this article: The Missing Victims of Healthcare Fraud
  • https://amicrazy2.blogspot.com/2019/01/my-scarlet-letter.html
...
Sooo many pieces to this perplexing puzzle….

And I see, very clearly, a very significant part of what was and has been happening to the other side of this story that has led to such a debacle of me.

The attorneys. The high powered, best of the best, clever and articulate, well paid attorneys that work for the hospitals and medical powerhouses.

The attorneys that know the Systems and how to work them best of all. The attorneys that know how to debate and know how to cunningly convince people to support their position regardless of right or wrong.

Is it they who have the medical providers eating out of their dirty little palms; seeking protection, from the fallacies of their own thinking that were inception style planted and then nurtured by those sneaky experts who imposingly and imperiously fed those fallacies to them in the first place? Those Medical providers, Now slaves, to their fictitious fears that are fed by the Masters from the fattened flesh of their own ever increasing attorney fabricated fallouts and fallacies.

Maybe I need to state this more clearly.

The attorneys that are paid significant amounts of money to protect medical providers are very likely the same people that train them on “how to protect yourself from malpractice suits,” when there really is no need for this or, at very least, training and policies need to drastically change because the laws are written to the degree of "no need to worry about malpractice suits.” It seems the actual medical providers do not know or understand how well the laws  are stacked so heavily in their favor that a suit against them is virtually impossible for a patient to win no matter how bad, frequent and obvious the malpractice is. Heck, nearly impossible to even find someone to try and represent you for arbitration.
Are their attorneys the the tale spinning masterminds that have your medical experts convinced that patients (you) are the enemy? Are they the reason providers are convinced that we, the patients, are completely unwilling to forgive or be reasonable in addressing mistakes when they are made? Are they the reasons practitioners and providers refuse to see or accept that they made a mistake? That last one may be sheer doctor ego, but I am guessing there is plenty artificial ego soothing and stroking done by their attorneys to keep them confident in their continued progression down the malpractice path.

I am certain they are The Ones that our providers consult when they have made a mistake. SO what advice do YOU think these Legal Experts are giving to our highly valued, beloved, and trusted providers that may have made a mistake with you?

Hmmm, When do they make money? When do they make the most? Whose best interest do they have in mind?
As long as your medical provider continues down the path of malpractice their attorneys keep getting paid. AND (my guess) the bigger, worse, or more obvious the malpractice is, the more the doctor will need the lawyer and the more $ the lawyer will make. I am sure it also strokes the egos of many to be able to say they won in an obvious case of malpractice. 
Plus IHC has the funds to outlast most of us in a court of law. 
Do you really think they are being given "legal advice" that is in the "best interest" of the patient or even in the best interest of the institution or medical providers that are currently so disproportionately protected by the laws?

So maybe, there was some innocence to my beloved betrayers after all? Maybe the manipulations were more significant elsewhere? 
And maybe our doctors are being indoctrinated to believe some very wrong and very harmful things about us, their patients, just so attorneys can collect the big bucks by preying on fears and fallacies that they, the attorneys, planted and then nurture.