The Powerful Effect of Being Treated with Dignity and Respect

Living with brain damage can be make life very interesting. The permeant effects I have still surprise me at times. One thing I have noticed and mentioned is that I am much more sensitive to just about everything. This not always a bad thing. Like eating healthy, I feel the negative effects so much quicker that it is easier to identify the problem and turn my habits around before the negative effects are impossible to reverse. 

Another thing I think my TBI's makes me more sensitive to is mirror neurons (you can read about those here: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3898692/ and here: https://www.psychologytoday.com/us/blog...). It seems I am a bit more sensitive to and even reflective of what what others are projecting. I feel it more and I reflect it back often without realizing I am doing it. 

...and as I am writing and thinking about this an epiphany strikes: there is very likely a connection to the suicidal impulses I feel when I am dismissed, degraded, and treated with other forms of disrespect and condescension. hmmm.... it makes a lot of sense why I have to fight my own brain and suicidal self-destruction impulsive intrusive thoughts when others wish for me to just disappear and dismiss or degrade me in an attempt to make me disappear. ...this theory makes a lot of sense in a lot of scenarios I have experienced recently actually... hmmm... interesting. 

Back to what I really came on here to write about: The incredible healing power of being treated with dignity and respect. 

This morning we met with the new Chief Prosecuting Attorney in the county where the charges were filed against me. The very lovely victim advocate I met with last week who helped set up the meeting was there to offer support. My husband was also there. I sat between the two of them as I talked with the Chief Prosecuting Attorney (how about we call him CPA). He listened, he asked questions, he treated me as if I were intelligent and knew what I was talking about. He treated me with dignity and respect. At one point, when I was starting to feel a bit defensive, he gave me a stern look and reprimanded with the common, "excuse me" or something like that, for my interrupting him. It is important to note that he was not rude, condescending or degrading, it was just that simple reminder that we all sometimes need when we need to allow the other person to speak. I appreciated his stern but respectful response, it made it very easy to correct myself, apologize, and listen to him. Especially since I knew from how he had been listening and treating me that he would listen when it was my turn again and after he said what he needed to or what he felt I needed to understand. 

It was very refreshing to finally be heard. 

One thing I noticed, and that I was very surprised by, was that I didn't cry at all. I think my eyes welled a tiny bit when I mentioned my son and out concern for him, but I was so composed and able to speak without the emotional interruptions that often require periods of silence for me to regain composure. I did occasionally loose my words but it was not too frequent and I was able to recover them fairly quickly. 

But the one thing that shocked me the most was the void of tremors. Although I was a bit shaky going in, while meeting with the CPA not even my increasingly tremory left hand revealed my "disability." 

I felt strong and confident. I felt more like me, the me that I really am.

On the ride home, my husband and I celebrated this tiny victory as we reflected on it and that is when I realized just how much of a difference it makes when you a: have support and b: are treated with dignity and respect. Those two things reduced the stress of the situation significantly.

This moment and those people deserved to be honored so I thank my husband and then once back home I sent the other two a quick thank you via email. That is when my eyes well and a few tears spill, but only a literal few. 

 Surprisingly the effects of being treated with dignity and respect don't end there, they hold. I was certain I would fall apart at some point, but I don't. I feel good and solid the entire day. My energy is good, my head does not hurt, and I have no tremors at all the entire day and this is such a pleasant surprise. It also helps me understand just how bad I really have been being treated by so many people at USU and those others I have had to deal with and try to resolve things with through this whole ordeal. Realizing this and feeling it helps me, and can continue to help me, recognize that it really is not me and I am truly not deserving of the treatment I have been receiving. Neither is my son. 

It also helps me appreciate those who have been a support, even if it is in very small ways. 

So that is good and I am glad and so very, very grateful.

...And now it is time to take my meds to make sure I don't get too glad and too grateful. What a weird disability to have.

(*published one day after events described)

Living to fight another day

 "Please let my heart fail before my brain does," I pray, because I know that would be so much easier on my kids and my husband. 

"I'd rather die than comply," I say in response to all the crap I keep hearing about getting the COVID 19 vaccine. I do not like how this pandemic has been handled; the divisiveness and fearmongering. In my opinion the psychological and environmental effects of how it has been handled by so many people, institutions, organizations, entities, governments, etc, has been far worse than the effects of the virus. And I don't love the world we are living in because of it. I don't love a lot about how people are treating each other and how I have been and am being treated myself. Why the hell would I comply with getting a vaccine because it might just save my life - A vaccine I don't believe in for a virus I that has proven to be not nearly as scary as they initially led us to believe it was; a virus that is being used by big cooperations and media as a money maker and is being used for political agendas that I do not agree with. I do not believe I am killing anybodies grandparents by not getting vaccinated and I do not believe children should have ever been told or made to believe that they are responsible for another persons death if they did not or do not wear a mask. That is horrible. So take it how you will, but I'd rather die than comply -add those other "trials and tribulations" and can you see why? 

The burdens right now feel too heavy. The prolonged stress of this is wearing me down. The continued  rejections, dismissals, denials, degradations, discrimination, is wearing me down. I am worried about my kids and how this shit has effected them. I am so worried about my son. He is so fragile right now but he is trying so hard not to be. I love him so much but there is so little I have been able to do to help him and the continued denials, dismissing, degradation is not just of me but of him also. I try to shield him from it but that is impossible and probably not wise, it will not help him to try and shield him from the chain of abuses that adult who should know better are excusing and justifying because of the one mistake he made one time when he was scared and distressed himself about how I had been being treated... 

This is not just a fight for me and my sake, it is a fight for his sake... 

but I am getting so tired and my brain is starting to malfunction because of it... Problems with working memory, focus, fatigue, emotions, filters, etc.  

So I pray, "please let my heart give in before my brain does" as I live to fight another day. 

feelings

Maybe blogging it out will help. 

School is starting again and I am nervous for my kids. Daughter is starting college. She is not ready and she is overwhelmed. I am worried about her. 

Son is starting his junior year and a new job. He is so fragile. He would not claim it, and he is trying, but I know he is trying so hard to not be fragile. I see it and I feel so much pain for him. This last year has been so hard on him. The crap I have gone through has been so hard on him... I pray constantly, hoping that people will be kind and give him a chance. Hoping he will find his courage again and find his voice. 

and I am sad... Not sure what to do with myself again or how to do it. I feel my potential has been lost to rumors and lies that people have spread about me that I cannot get ahead of. 

I feel worthless and insignificant. I feel forgotten and ignored. I hate that I wonder why I am here at all. 

I don't really know what to write... so I guess never mind. It's just not helping today...

I don't know what to do. I am so awkward now and nobody wants me, they do not see my potential... So maybe I don't actually have any. Yet I don't really believe that. Its just that rejection hurts and we, as a society, are still so far behind in how we treat people who have bipolar or who have had TBI. We, with bipolar and/or who have had TBI are so misunderstood, mis-categorized, stigmatized, ostracized, and mistreated... It's hard and exhausting and I am so lonely hear. 

Maybe it is time to run away again. 

Push Crash

 I'm supposed to stop and take a break if I am approaching 80% and/or before I crash... I am feeling so tired right now that I just want to go back to bed... But it is so early in the day and I haven't gotten hardly anything done... I don't want to stop and take a break. I don't want to feel so fatigued and worn down so early and after doing so little. "I'm not pushing myself hard enough," I think as I refuse to take a break. I am determined to be fine and capable. I have so many things I need to do and so many things that need to be done in order to keep fighting, but the thought of it weighs heavy like it is pushing me into the ground.

I pick up my laptop and decide to watch a training video. That might be a good break I think. I even take it to bed thus allowing myself to fall asleep while watching the video if that is really what my body needs. But my eyes start leaking as I open my laptop... Have I already pushed to hard? My eyes leak even more and I decide to come on here to write it out first. 

This is what this "disability" looks like. It is very hard to  accept and come to terms with and people really have no clue and rarely do they even try to. 

push crash happens too fast...

Plights and Fights and very painful Insights

 Sometimes my brain collapses in on itself and this is the best I can do. Blog

Hard time getting up this morning. Finally up. Get dressed and ready to go. I need to bring the expungement certificates to Cache County. I have been reluctant. I want to make sure that is the best thing to do, I want it gone completely, especially since the charges had been filed by "mistake" but they will still show up on background searches because teaching, what I do, and what I want to do, require higher security clearance so "it'll always show," I am told and, "you won't want to try and hide it," even after its expunged they tell me... I want to get it taken care of but how? I have tried but nobody seems to care that the prices of their "mistakes" have and continue to be so very high for me. 

This is too much right now. Too many stressful and overwhelmingly emotional things to handled. These are the times when I really know and have to face the fact that I do, in fact, have a disability.

And this is what it looks like. 

I have so much to do but I can't keep it all straight and it can easily become cognitively and/or emotionally overwhelming. I know when it has become cognitively and/or emotionally overwhelming because my heart changes it's patterns and functioning, I will feel a surge in chemistry, and I feel physically weak. I cry very easy and I become so very forgetful and tired. Sometimes so tired that I can hardly keep my eyes open... it becomes a battle to survive and thrive... then I feel guilty for being so weak. But it is not because it is intellectually difficult, it is because it is emotionally difficult and I am being treated poorly through it. 

... it's all I can do to keep going...

Too much. 

And my body is not allowing me to go today...

Jumping now.

Insurance papers form the car insurance; Explanation of Remittance. I'm not sure what they mean or what I am supposed to do with them. But in them there are notes from visits with my psychiatric PA. She documents "suicidal ideation" but that's not right because I'm not idealizing or contemplating it... It is more impulsive and intrusive... "Maybe I am misunderstanding the term ideation," I think. 

So I look it up. "Ideation: the formation of ideas or concepts." 

Okay, I suppose that is correct. 

These hits that hit so hard and hurt so deep, coming from people who should know better -and even declare evidence of that on their own websites - actually causes, triggers, encourages, (or whatever) the "formation of ideas or concepts" that equate to ones ceasing to exist. 

Why is that? 

It's pretty obvious really: they are telling you and sending the message loud and clear that you don't matter and they don't care. 

The not caring... We are supposed to think, "Whatever, who cares what you think," right? But in reality, when that comes from the exact people who should care, whose job it is to care, the ones who are supposed to be and that we believe are actively working to make a better more humane, fair and caring world... It cuts so much deeper than we allow it to... 

Jump. 

So many kids with anxiety issues. So much increase in depression, PTSD, suicide, and so many mental health issues... 

Connect

It's not terribly surprising now is it? 

and all I wanted to do was help... 

Story time: I got to hang out with an old friend. She is telling me about a brother's girlfriend's ex-husband who is the father of her child. "He has a criminal record that includes child abuse," friend explains as she expresses her concern and frustration with him being allowed, by the courts, to keep his child for longer than initial arrangements had allowed. 

It makes me wonder and I ask, "was he prosecuted for child abuse or just charged with it?" 

My friend doesn't know. It does not seem to matter all that much... and even I think so because we all know if he was charged for it then of course he did enough wrong to deserve the charges and he probably just had a good attorney...

"This," I point out, "is exactly what is wrong with my being wrongly charged. That is exactly what people will think about me." 

"Your right," she says, "and that is totally unfair." She knows I'd never do what they accused me of and she thinks it is so stupid that anyone ever even thought I would put my kid up to what they accused me of... She knows, but we both know others, who don't know me, who may be looking to employ me or admit me into grad school, will not know and will automatically assume that I stalk and harass people just because I was once charged for it. 

...so my heart breaks again seeing the reality of my plight...

and why I have to fight.

Pressing matters

Right now, sleep or write it out? Well here I am ... tears streaming again as I fight to stay brave and strong and try to get myself out of my way... 

It's unreal how Utah State University has violated so many of their own professed and published beliefs and standards and how they have no desire or concern about it in regards to me. Here's a fun example "We recognize racial trauma and intergenerational trauma has an effect on all aspects of the student experience including mental health and well-being. We offer resources, support, and advocacy to USU students through our student-centered programs for these specific struggles." https://www.usu.edu/student-affairs/ So they claim to understand "intergenerational trauma," which means they know the stress and discrimination I was facing would/could effect my kids, and yet multiple people from this Division of Student Affairs opted to exclude me and every person in my family from the promises their division makes, their obligations to due process, and procedural fairness that is published for the world to see on the homepage of their website. Read their website and all about how "The Division of Student Affairs inspires, engages, and challenges students through inclusive, holistic, student-centered programming," and maybe you might start to understand why I have to keep fighting.   

The more I dig the worse it is, which I know will ultimately help me because it is so blatant and obvious, but getting that help is very difficult, very time consuming and very taxing on anybodies brain. And for me we have to add to that the permanent scars of TBI in regions that effect emotions and abilities to focus etc. They should be sensitive to that, but, much like the Neuroscience Institute, instead, they are actually using those weaknesses and vulnerabilities to their advantage and a preponderance of evidence might very likely find that they have been (more likely than not) engaging in the act of intentionally pushing a person to their emotional limits in order to get them to back off and retreat...It's called intentional infliction of emotional distress. 

I am so tired when I should not be and need to not be, but my damaged brain can only handle so much... And it is beyond me why, amidst this, my tired brain keeps trying to return to that betrayer that it once felt was home. 

The effects of this? In addition to dramatically increased tremors and many other exacerbated symptoms, my eyes become heavy to the point that they can hardly stay open. If I force them to they will leak and release the hydrating resources of my metaphorically drought starved body. 

What to do?  It's distressing but I have to fight. Somebody has to stand up for students and people like me who are so flagrantly underserved and so brazenly marginalized. Especially when it is happening in a place like this, and this fight is much more straightforward that they previous beatings from IHC and Dr. He.