tired brain

I keep thinking I'm done and moved on only to find something nagging again.
The thing is I know he messed with my mind
and it was not entirely unintentional
and so many things
like never being told who his superiors are to file a complaint with,
this whole "investigation" without representation
are just so wrong
and this is supposed to be the safe place

..."we just need to find the right fit, the right person for you" says my concussion doctor.
no.
I am not going there again.
There is no "right fit" and "right person"
I'm not opening myself up to that again.

Jim Kwik

My sister sent me a link to this man's story. His name is Jim Kwik and I loved his story.
https://www.youtube.com/watch?feature=youtu.be&v=6jbpn7Xb7pE&app=desktop

I was not as young and I did not have such extreme problems with learning as a youth from my brain injury but I understand the feelings of inadequacy and not measuring up. I understand and relate to being a product of your condition -only my condition was not understood to be a broken brain; from it actually being physically broken, mine was "why are you broken" "what is wrong with you," ignorantly viewed more as character flaws, when they were not. I wonder if this Jim ever felt that way. It is just now, in my reprocessing with the PTSD from the mTBI (concussion), that I am finally able to understand and say with surety that it was not my character that was or is broken, it is my brain. [I suppose that may be what I am actually trying to stand up for in my quest to resolve what I feel so determined to resolve]
I love the story of motivation and determination that leads to an even more brokenness. It is tragic and heartbreaking but it is reality and I that is why I love it. He paints the reality the pitfalls of with belief  "if you just believe and work hard." Alone that belief is not sufficient or healthy when you have broken brain. When you are intelligent and have other strengths it is hard for people to know the reality of the struggle as something physical. It is not due to a lake of belief or determination it is actually due to a physical problem.
I love that he reframes his thinking. He acknowledges his weaknesses and decides he needs to adjust his goals. He basically realizes that he needs to work smarter not harder and he decides that the first step to that is learning how to work smarter. I also love the superhero analogy and how he realizes he still has powers he can tap into despite his brokenness, he just needs to learn a new or different how.

TBI is difficult.
You become a different version of yourself and you have to figure what that means, and out how to become a new you you can love and be happy with, how to accept your weaknesses and how to live a happy productive life without that part of you that you once had. It is a physical disability, only people can't see it and it is not one you are really able to talk about. You will be stigmatized and discriminated against if you do and you do not have the same protection as someone with a very visible obvious disability. You will hear things like "you are high functioning" which is fine and true but still stings a little as you can't be sure what is being implied or where the comment is really coming from.
It is a disability that is hidden but that you can't always hide and yet you will work to. It makes no sense and we have these tragic ironies and hypocrisies to handle on top of the problem itself. We are very often very much alone.
So I am loving hearing and seeing more success stories.
I also love this video from Jim Kwik not just for the content but because in it, when he is talking, I can see and hear the subtleties that I recognize are actually coming from his broken brain. I can related to those and I love it because I know he is authentic, he is real, and he actually, really does relate. I love his imperfections in this one.
https://www.youtube.com/watch?v=3tCWngax6WE

a not-so-straight gait

I'm here to complain today.
but first I have a saying, and my kids hate it, so it must be a good one: "your not allowed to complain about it unless you are willing to do something about it."
but sometimes we complain because we aren't sure what to do about it. or even where to log our complaints. Sometimes we cause bigger problems by complaining... but now I am getting sidetracked into the philosophical unknowns that can turn into black holes
So I'll just complain.
My lower back sucks right now.
Walking again after so long of not and when some part of you is recovering from surgery is so much harder than I realized. Mine was just my ankle. A mere 2-3 inch scar that wraps the ankle bone is all that shows (not entirely true, it's swollen still and my calf muscle on that leg is still skinnier) Yet at 3 weeks able to walk again more things hurt now then did before or immediately after surgery.
My lower back hurts so bad and my heel, ankle, calf and all these muscles and parts of my foot, I didn't even know existed before, hurt. My gait is very off and has been for some time so it's throwing everything else off.
I'm so glad to be able to move again but I am still so limited in what I really can and can't do and it's hard to take it slow...and to not fall into the push crash cycle.
And here we go again, but really,
It's the story of my brain once again mirrored or parallel in some other form that is helping me to understand the life I have long been so confused about.
That stinking broken brain of mine, that was so grossly misunderstood, was throwing off my gait and making it hard to keep things straight.
Push, crash
and other seemingly simple concepts and problems to solve to the professionals become much harder to overcome when they are so deeply ingrained.
And hide.
Hide the symptoms because you are ashamed and you will be judged, or berated.
...or simply things like you won't be allowed to learn how to drive corvettes racing style at the Spring Mountain Motor Resort. Stinking ankle.
...I do wonder if just as the ankle -initial injury was overlooked and misunderstood- needs to get worse before it can get better the brain may also have needed to get worse before it could get better? Needed to be broken again in order to be reset correctly. Man, I hope this reset is better in the long run.

Awakenings to sane things

I am meeting with my accident attorney tomorrow. I had thought to fire him. I have not been easy for him these last few months. I had to asses my fears and the why's for them. I had to talk to him, have uncomfortable conversations. He was patient. I have sure needed that.
And in the end I have realized my fears are and were being fed also by my condition... I was in state of distrusting everyone. My lawyer was a friend from high school and I love him, because that is what I do, I love people, but it is not a romantic thing it's an appreciation thing. I am sorry for the hassle I have been for him.
And I see that I am still coming out of this.
My brain is a fascinating place.
I am hearing my conversation with my brother-in-law and wondering if it is time to switch medication. See someone more specialized.
I did not want to do that until I really understood what was going on and what had happened.
That is where my Neuropsychologist messed up. He lost objectivity with me and that combined with the dictates of the rules, policies and procedures of his profession resulted in a dangerous place for my mind. I think he could have managed except he was forced to follow all these rules that were meant to protect him but at my expense. I think I was right all along, and so was he. Except that he misunderstood me and the strengths and weaknesses I had at that time.
I am sorry for this. And I am sad for this and I am sad every time I know that I have lost him forever.

I asked my lawyer if he could look over my medical records with me, help me know if I even need to worry about it. My brain has been stressed and scared because it did not know what was happening. It was scared that I had crossed over into a irreconcilable place. I have not been the same, my mood and cognitive stamina are coming up short. Too many influences and voices have been playing with my mind. That has been a problem for me before. It was why I used to not watch television much or read too much. It is why church is often times not a safe place for me.
I am still coming out of this shock and heartbreak. I am still not completely understanding what happened to my brain and I know that he has the knowledge and expertise and he probably could explain this in is intellectual way from a neuropsychological perspective. But he can't for me or hw won't. And that still hurts. And it kills me that he does not understand me. He does not realize all along I mean no harm I just need to understand what is going on with my head. I need to fix it. It has to be solved. It would not be wise to continue in my madness and the only way to not is to figure it out and fix what I can.
I have digressed once again. But as I was looking over the concerns of my medical records. The ones I need to meet with my lawyer about, I know that I was wrong. I was misinterpreting so much so very incorrectly when I was broken, hurt and scared, when I was still somewhat straddling two worlds.
I am sorry. It is why I did not want to file a complaint. I knew I was not right in my brain and I did not have the help to do it. I am so sorry. I really was not ready to mourn that loss. I will maintain that he was helping me so much and exactly what I needed. His work with me still is what is helping me through. He was so good at letting me philosophically wander but then reigning me back in....
I miss him. and I have made a mess.
but I really was doing the best I could all things considered and that is the irony of it. I was wrong in who I distrusted, I was wrong in my interpretations of somethings and I knew this was a possibility that I needed clarification on but in my mind I could not risk what I was wrong about, so I was confused and confusing and the very things that I was wrong about made me difficult to help while being the evidence that I needed help.
And this, my friends, is why mania does not mix well with reality. Proof in the pudding that we think we have it more under control then we actually do not.

A Guide Denied

a lot of tears through a lot of years
but Depression
that was not my problem at that point
that was why "I think we are off track"
he got lost in the Tao
needed a spiritual guide
but that he denied
because he doesn't believe in forever anymore?
Depression
...satisfied with his life, if he died today he'd be okay
I was his drug
he needed a hug
further he's dug
...he needs a drug
And I don't know what to do,
I don't know how to help
because it was supposed to be about me
not he
literally and ethically
not that I cared
but that I dared
to mention reciprocity
and seek for clarification
and his professional explanation
for the dogs that needed fed
then inside my head
When my buried hell was flooding out of my broken box
breaking down my walls
...kicking down doors
words that I don't fully understand coming out of my mouth
a guide denied?

Dear Ex-Therapist,

Here is the thing, I understand what happened and it was a wild combination of a whole lot of things. the only thing I really don't know is how often you play with your patients. The very problem you thought might keep you safe from getting into trouble from playing with patients, from enjoying your job was the very thing that tripped you up this time.
TBI and I.
You toyed with me. and I played along.
This toy you told too much.
You allowed yourself to be vulnerable because toys have no power to hurt. You allowed yourself to be vulnerable in trying to protect your own ass.
it has backfired
 because you built me up too strong to protect your ass, forgetting that your job was to protect mine.
Now I can't burn out and I cannot die
I can't even disappear for you because you built me to protect you.
....from yourself?
You are broken and hurting or you are hurting others for gain,
but either are not well by the Man Upstairs and in Indra's net.
You are far too valuable.
You have gifts and you are a magnificent creature.
Not just for me but for many.
I'm not sure what you are to do or the lesson you are meant to learn and I am not sure the part I am supposed to play... I don't want to be the judge in it. I don't really understand.
But I do know there is something that needs fixing and breaking me is not going to save you or fix you.
So please find your soul again and trust the gut that is good. You are not the bad dog, or the bad dog is not bad, you are fun, lively and playful. You are good at connecting with people. You care about people. You care. You love and have passion. You are intelligent and driven when you need/want to be. You are so very good at compartmentalizing and organizing. You are strong. You are compassionate. You are curious. You are creative and thoughtful. You dare to make mistakes, [though I am not sure you are very good at admitting when you were wrong]. You are determined. You are a beautiful man and you are very loved. You are needed in so many ways for so many people, and I think this wears you down. But you are better than you know.
I was sent to love and protect you the way I need to love and protect myself. I wish I understood that better and I am sorry I have made so many mistakes, I was not meant to do it alone.
This perfect storm will break the will of whatever it is meant to break.
I hope someday to talk again.
 if not
I'll find you in forever
when you think you have disappeared
and if you are stuck in darkness please listen and take my hand when I try to pull you out.
...because I still believe in forever.

Spirit animals and closed gates

The problem with suggesting I was not manic is that I will consider it.

And as I consider it...

My mind replays

I was embarrassed and it takes guts to try to resolve these things, they are proving why.

Yet they are the ones who are supposed to understand, who are trained to know. They are the ones I am supposed to be able to trust. It is supposed to be a safe place for me and my kind. ...And I suppose I am determined to fight for the humanity I believe in.

I have trusted them, trusted him, so much more than they have ever deserved. Continuing to hope they will be what they promised to be when they took their Hippocratic oaths and/or agreed to their ethical codes. 

It is hard and I don't understand entirely what happened and why. I don't really know if it would be a good idea to talk with that man that has hypnotic effects but I can and do have hard conversations. I can and do hard things and I face my fears because I know that living in fear is no place to live while pushing through and coming out on the other side is far more rewarding. 

I wish they understood this. I wish they understood this about me. 

I am not after them. their power,  their money, or anything else. 

I am after me. I am trying to figure out me and they are the professionals that are supposed to be able to do that, I have paid them for their knowledge and training.

... I am off on a tangent...

But I will consider, because even in spite of their continued abuses and neglect, I will consider what they have to say and what my part is and what is right and wrong or at least what feels right and wrong to me. 

I was angry when they said I was not manic. I was angry because it has been so difficult to manage and so hard to understand what has been going on with me and why.  I have questioned it myself but as they would ignore me and/or be freaked out by me, as I would realize the stupidity of my words or actions I have to allow myself to accept that I was. And it is a hard pill to swallow. Then to be told I am making it all up... SO I went back, thinking and reading, the stuff I have not published here, and I consider; If it was not, then what?

As I considered I started to feel things again. As I read, I started wondering... started believing things again... that maybe are true and maybe are correct... but were denied by the other party?

I had to stop. And laugh. I had to laugh BECAUSE ... 

Well I made a meme to explain it:

So I laughed because... I just don't think they really want me to go there and to believe that. BUT

Maybe I really was not manic. 

They might want to talk to me even more than, because God's got words for them.

So you choose, me or God, who would you rather face and/or deny talking to or through? 

And I'll stop at that because, even though this was just a part of the story and what was going on, that part is a path I'd rather not head down [again] right now. That is the path I struggle to navigate and the path that I speculate wants to pull me into complete psychosis. So while it was interesting and fun to consider, while at times I maybe need to be open to that path, when it leads to results like this I think it is best to close the gate to that path. 

And I'd rather talk about it when I the gate is shut. Please don't open that gate. Thank you.