Every morning I wake up having to fight you, even this much later. It is very annoying. Especially since I am not really sure what the fight is and what it needs to look like. I just know that you are in my head when you wish me dead and I wish for you to be gone out of my head and my heart.
It is also very annoying because I don't know what the real battle is. All of that got very convoluted when you lied and denied about what was really going on with me. You would think this would make it clear to my head what the battle is but there are many things that complicate this: You are the professional with the PHD education, training, and experience. You are supposed to be the one that knows the truth and can diagnosis accurately. You are the one that is and was paid to do this. You are trusted and I trusted you. I handed over my faith and confidence to you so that you could walk me through the healing, education and understanding that I needed. I loved and trusted you. I was highly and extremely vulnerable in many ways when my brain was literally broken and damaged. I was experiencing PTSD. I was having a flooding of memories that I had suppressed or forgotten and this flooding may have been directly related to the work we had been doing to "uncover my buried story."...Many things going on to complicate and these are just a few... I also wanted to or needed to believe what you implied you felt about me; needing so desperately to be loved and accepted as some of the realities of my struggles in life were suddenly being understood through the lens of the under-treated and misunderstood TBI from my past. But the thing that convoluted most is the fact that you were actually helping me. So hard for me to fathom why you would suddenly have nothing to do with me AND try to make it appear as though I was doing wrong by trying to understand why my brain had and was breaking to the new level it was.
So many times I had told the people at your institution the things I actually was trying to solve but they blew me off, you blew me off, instead trying to pass it (and me) off under the false pretense that I was mentally ill but not in the way I was trying to explain. It was made to look like I was merely obsessed with you and that was primary to the actual and real problems that were manifesting; that of a more severe TBI that I had tried to explain again and again to so many providers and you. But nobody was listening. Instead I was branded and handed over to people who cared even less and whose job is to set things up for gaslighting and/or a corrupt cover of ass and tracks in the event that one does try to pursue legal action. You call them "office director" and "patient advocates."
I believe I could have moved on and not be battling EVERYDAY the things you said if I had not and was not experiencing the symptoms you deny and if I did not actually have the conditions you and the concussion doctor denied and/or ignored - concussion doctor who had asked to be my primary care provider for brain and car accident related injuries.
But I am stuck in this reality that you twisted and tainted for me and that follows me medically in my records. It is not very fair as I try to untangle and put together the puzzles pieces that were misinterpreted, mishandled, and misconstrued from the very beginning, not only by you and your institution but by others. Not terribly surprising the first to blow me off and misdiagnose was also an IHC provider, which does make me wonder if Concussion Dr. was covering and hiding things from the beginning.
And then lets add to it the the manic burst of energy I tried to show and explain to you. The breaking of the brain to the next level, possibly due to my ability to access that reaction out of self-preservation when what was happening was more than I could handle. When I told you I was not sure if I could go back to teaching because of the lower cognitive stamina and when I told you that my personality was still changing too much -a full year and then some, after that second blow (another thing I told you)- you simply said flatly, "you are going to have to mourn that loss," and then continued with also taking away you. Another loss for me to mourn. Another blow to my head and my heart. It was too much as memories were flooding and rational reasoning returning enough to know that I had been handling the injuries poorly by trying not to burden and cause undue expense when I was literally broken in more ways than all had assumed (or wanted to keep hidden to cover mistakes made from the start). Or was I so good at hiding and handling my injuries since I had been conditioned to for years since the first TBI because I was "one smart cookie?"
So complex.
Yet you said your life was "very complex right now," and to that I say "you have no idea." Although I am certain you do because of the lengths you were willing to go to hide whatever it is you are still trying to hide. Which is another burden on me, knowing that you are hiding and that you may also be manipulating other clients who are also broken, vulnerable, loving and trusting.
So the battles wage on. Every morning that I wake, every night as I try to fall asleep, in the day when I am reminded of you, which happens easily since you are now tied to my chemistry; a de-ja-vu when my feelings go up or down. A mess that intrigues and fascinates but that no one can quite understand... Many will dump me for it, choosing instead to blame me and jump on your wagon, because it is you they are afraid to distrust. Why? because what would that mean for them if the medical providers and/or therapists that they love and they trust were to do something similar? It is unfathomable, unthinkable and since I have long been followed by conflict and tension, misunderstood in the intelligent intensities that come with a self-solved broken brain it is much easier to say it is me anyway and escape any further ties to a woman who just might be unstable...
So unkind. So unfair. But it does not matter because I am nobody of significance and no-one I know dares speak up, no matter how many times I have put them first nor how I have loved or adored them. I have made myself second class so why would they stand up for me anyway?
Maddening and yet I understand and so I still love them regardless of how they treat me because of you... the reaffirmer of my second class status and worthlessness.
And round and round it goes.
Dear Careless Therapist, Dear John, Dear schmuck that manipulated me (me, a prime target for grooming) simply to protect himself,
I know and I understand that you don't really love me, don't care and are not nearly as brilliant as I thought. Or maybe you are but much more diabolical, manipulative and clever in your charisma than anyone else knows or dares to see and for that I am truly a threat. If I can see through you than others might too and your games will come to a disastrous end... I understand this about you but do you understand about me how very easily all of this could have been avoided if only you had been real and honest with me, if only you had not lost objectivity and/or stopped the manipulative games. I could have and would have forgiven quite quickly -I already had, so many times over.
I could have even helped you...; Although now I see how that could have been even more disastrous. Me helping you, believing in you and loving you the way that I did, would have helped you to be an even more convincing con artist as I would have pointed out the holes and the flaws that you made misunderstanding the me that I was. With my help you would have then been completely undetectable, unstoppable, and indestructible in whatever games you wanted to play with the unsuspecting, broken women that trust and love you in your position of power. Considering how this whole deal has been handled and what I have been made into by you and your facility, I see that this may be a very real possibility when prior I thought it might simply be the product of my manic broken mind.
And it saddens me. It angers me. It frustrates me because of the power you have and the responsibility and accountability that you and your institution entirely refuse when you know you were being quite reckless and you know that you have the upper hand in just about every way.
It is no wonder I wake up tired and I am annoyed with myself for still feeling the feelings I do and still wanting to believe in you and your dishonest institution.
Dear Careless therapist this is now why I want to go into your field, so I can stop abuses like this and people like you, or at least bring to light the harm your kind can and does cause when how "countertransference" is handled is so abusive and unnecessary.
Sincerely,
Erica Vellinga Saxton
I do not hide nor will I, because I have nothing to hide nor should I be ashamed or shamed by others. And because I openly invite conversation from anyone about you and this topic.
Wednesday, May 27, 2020
Tuesday, May 26, 2020
-tired head poetry
At the end of my journey. I care to think.
But it seems never ending because of the shrink
ing of my brain
that really has happened.
Evidence proven on the MRI although I knew all along
but still wanted to deny.
Because then I don't have to think
about snowboarding and riding
motorcycles
or other cycles
across treacherous terrain.
And I can just keep pretending, just like everyone else,
that I really am just fine.
Miraculously recovered because neurologist 1, Dr. Church, who killed himself by-the-way, did say he was very pleased with how my young self was doing.
That was enough. Satisfied the parents. No need for anything else.
...then hit again.
Still intelligent when the
"One smart cookie" I was
said, "you should have seen me before."
because I was more.
more brain power and size
not shrunk from broadside
hit of the airbag that deployed all of its forces to "protect" my face...
"protectors" now all the deflectors of my care
protecting turned into betray.
Trust who I must
turned into dust
and I am left grabbing at thin air.
Which just isn't fair.
so unaware
of how harmful their games really are?
But they know. evidence in just how far they will go
to cover the freak show they carelessly continue to grow.
My head is tired. Tired of spinning and trying to sort all the pieces of
the culminating event. the yin and the yang, the messages playing out just as clear as the days they belonged to.
I don't understand the carelessness of that man and it breaks me again and again. I want him to be gone and my brain to be sane entirely again. but the sane and insane to contain will always remain because the feign of the trained was entirely too much for my broken brain that wanted to believe the feign and the game.
Untangle the tangles that you are not allowed to touch... Sort out with the sorts that are out.
Its not fair
and so unaware
of just how vulnerable you are
when you are hit by a car
and then people will take things too far
while defensively claiming you are,
At a time and in a place where all will agree
that blaming the client shan't be.
Countertransference implied
and then denied
Why does he hide
with no explanation or apology for the now implied misunderstanding?
So bizarre
the cancer you are
to my head
you are determined
to have dead.
"not I," said the kitten
when the big red rooster asked "who will help me let it burn out?"
...but "not I" is a lie because I did at least try
but I just could not help me die.
Even when God says
I maybe should try
to be all that is asked by this guy.
...that I know has talent and skill for the mentally ill that are that way due to TBI...
...But I will not try! thanks to Jesus man guy from the institution of younger years
And I will not try because I would rather not die
and I would rather like to believe
in the way we can change the world for the better by helping each other,
and sharing our truths no matter how hard it may be and
the reality of the ostracizing and stigmatizing that must be faced in order to be the change I must be to help proceed with the change I wish to see in this world.
To be or not to be? Die for a cause or live for change?
that is the real question
And still I know the quickest way to kill fantasy is through reality
and maybe, just maybe, that is really who/what needs to die
the fantasy of that guy
and the amassed amount or manic emotions and memories
But he will not let the fantasy die, no matter how hard I try
the fantasy won't die
because reality is absent
...because very well I present?
when I am presenting.
Maybe he still wants the fantasy to cling to-
better I die than the imaginary, the presentation of my flattery,
And the pride inside
of the egos' held by "the best"
But it seems never ending because of the shrink
ing of my brain
that really has happened.
Evidence proven on the MRI although I knew all along
but still wanted to deny.
Because then I don't have to think
about snowboarding and riding
motorcycles
or other cycles
across treacherous terrain.
And I can just keep pretending, just like everyone else,
that I really am just fine.
Miraculously recovered because neurologist 1, Dr. Church, who killed himself by-the-way, did say he was very pleased with how my young self was doing.
That was enough. Satisfied the parents. No need for anything else.
...then hit again.
Still intelligent when the
"One smart cookie" I was
said, "you should have seen me before."
because I was more.
more brain power and size
not shrunk from broadside
hit of the airbag that deployed all of its forces to "protect" my face...
"protectors" now all the deflectors of my care
protecting turned into betray.
Trust who I must
turned into dust
and I am left grabbing at thin air.
Which just isn't fair.
so unaware
of how harmful their games really are?
But they know. evidence in just how far they will go
to cover the freak show they carelessly continue to grow.
My head is tired. Tired of spinning and trying to sort all the pieces of
the culminating event. the yin and the yang, the messages playing out just as clear as the days they belonged to.
I don't understand the carelessness of that man and it breaks me again and again. I want him to be gone and my brain to be sane entirely again. but the sane and insane to contain will always remain because the feign of the trained was entirely too much for my broken brain that wanted to believe the feign and the game.
Untangle the tangles that you are not allowed to touch... Sort out with the sorts that are out.
Its not fair
and so unaware
of just how vulnerable you are
when you are hit by a car
and then people will take things too far
while defensively claiming you are,
At a time and in a place where all will agree
that blaming the client shan't be.
Countertransference implied
and then denied
Why does he hide
with no explanation or apology for the now implied misunderstanding?
So bizarre
the cancer you are
to my head
you are determined
to have dead.
"not I," said the kitten
when the big red rooster asked "who will help me let it burn out?"
...but "not I" is a lie because I did at least try
but I just could not help me die.
Even when God says
I maybe should try
to be all that is asked by this guy.
...that I know has talent and skill for the mentally ill that are that way due to TBI...
...But I will not try! thanks to Jesus man guy from the institution of younger years
And I will not try because I would rather not die
and I would rather like to believe
in the way we can change the world for the better by helping each other,
and sharing our truths no matter how hard it may be and
the reality of the ostracizing and stigmatizing that must be faced in order to be the change I must be to help proceed with the change I wish to see in this world.
To be or not to be? Die for a cause or live for change?
that is the real question
And still I know the quickest way to kill fantasy is through reality
and maybe, just maybe, that is really who/what needs to die
the fantasy of that guy
and the amassed amount or manic emotions and memories
But he will not let the fantasy die, no matter how hard I try
the fantasy won't die
because reality is absent
...because very well I present?
when I am presenting.
Maybe he still wants the fantasy to cling to-
better I die than the imaginary, the presentation of my flattery,
And the pride inside
of the egos' held by "the best"
Thursday, May 21, 2020
Untangling the Mirror Neurons
So I decided after the last debacle of an appointment I didn't care that the place I wanted to go to first and all along does not take my insurance, I was going to their neurologist because at very least the communication with my psychiatric PA would be easy since they are run through the same university medical system.
Now I embrace my TBIness and jump-a kind of "kersplat-splat" communicating as my dear friend Renée calls it.
-Mirror Neurons
I think that TBI magnifies those a bit.
I think that TBI makes us a bit more childlike
I think that TBI is actually what made me an effective and talented elementary school educator.
I kind of understand better how their little brains are working and processing.
I get that when our little kiddos repeat something it does not mean they understand it, or at least not completely yet. It means they are processing and trying to learn. It means they have or might be picking up on some portion of the concept and they are hopefully making progress towards a more complete understanding. I would utilize this as a teacher and use it as a tool in the reverse. I would have kids repeat things to try and help it stick. I would ask them to repeat back in their own words. I would have them repeat to a friend or try to teach the concept to each other. I would listen to how they repeated and ask clarifying questions to make sure I really understood where they were at in their learning. Now I can't take full credit for these teaching strategies because I also learned them in my teacher training college courses, but I can say most teachers I know and have worked with don't quite understand the significance and mechanisms of how and why these strategies worked. Many teachers did not utilize them fully or very often. My TBI also helped me understand that there is usually more then one way to do things. This understanding is also highly useful in working with children. It is important for them to learn if we actually want them to become creative problem solvers and not just rote conformist robots.
Here is my theory: A TBI works something similar to a child's brain because a child's brain is still firing all over the place and, as their brains develop and learn, their little brains find the fastest most efficient routes in processing and preforming different tasks. Kids' brains are working to develop the super highways of processing that adults have developed so solidly. Adult brains have learned to work so efficiently, taking those same neuro-pathways, that we know a whole lot about what area of the brain is is working and responsible for certain tasks. Adult neuro-pathways are so established and so efficient at the job they do that it can become extremely difficult for people to think outside the boxes that they were wired and trained in.
But the TBI brain has had to learn neuroplasticity. When one part is injured that is best suited for that task our brains do their very best to find a different way. So in that way, our brains can function a bit more like a child's developing brain.
And that is not always bad thing.
But it is terribly misunderstood.
Even by the professionals within the industry. Which is why they really should listen to us in more respectable ways. We are not stupid, in fact on the contrary, our brilliant broken brains can make connections that non-broken brains don't even remember exist. Sometimes at hyper speeds.
Mirror neurons are another beautifully brilliant tool we have... that sometimes causes problems, as we sometimes are not fully aware of, why, how and how much we are mirroring. We can also become easily sidetracked and forget where it is we were really trying to go. This can be good for those around us if they understand it, but it can also lead to easy abuses of us. We can be redirected fairly easily but the emotions of the other person. I believe this was happening to some degree with neurologist Dr. Untangle as her preconceived notion frustration or her misunderstanding me impatience definitely took me off track.
This happened very definitely with that one guy, Dr. P-Dr. He-Dr. Jackass or what ever I call him these days- I was easily derailed from what I was desperately trying to show him and the subject that I knew needed to be addressed, the very reason I was saying, "I can't loose you right now," because I was reacting too extreme, there was something more going on with my head, and I was, in fact, manic... But mirror neurons really liked that man, and went easily off track with him.
And TBI is likely why. But I had been misdiagnosed, it was being called a concussion, which is not small thing, but is not the same as a permeant, visible on MRI, damage causing TBI.
I can explain that too.
But mostly, if it had been recognized for what it was in the first place by the first doctor, I would not have been fired from the school I worked at, at least not the way I was, and many things would have been handled very differently, possibly even how I was handled by Dr. Jackass Perri. Sorry, Dr. Jackass, that you have progressed to that identifying tag, but I am sure you understand why and YOU KNOW YOU DESERVE IT... which actually brings me to another not-so-negative thing about us TBI'ers- I can call you that and mean it but also still love you and easily forgive with a willingness and ability to move past it for the good of all involved. We don't hold grudges the way others do. Maybe not at all. Sometimes maybe we should. I digress, but we have been broken open and we know and understand very well: human foibles, that people actually can learn and change, and that people are not as bad as the mistakes they make.
Your welcome. Also, we are either not as, or more, smart ass then we can come off... but we are definitely not as arrogant as we can seem. And these things make me laugh, maybe in my broken brain-laugh at inappropriate times- kind of way. And maybe only I and my broken brain friend Renée actually get my sense of humor, but that's okay with me.
And I just have to add one more thing about those mirror neurons we TBIers are extra sensitive to, If you think we are being a jackass or stupid it probably has more to do with those mirror neurons reflecting back you back.
Now I embrace my TBIness and jump-a kind of "kersplat-splat" communicating as my dear friend Renée calls it.
-Mirror Neurons
I think that TBI magnifies those a bit.
I think that TBI makes us a bit more childlike
I think that TBI is actually what made me an effective and talented elementary school educator.
I kind of understand better how their little brains are working and processing.
I get that when our little kiddos repeat something it does not mean they understand it, or at least not completely yet. It means they are processing and trying to learn. It means they have or might be picking up on some portion of the concept and they are hopefully making progress towards a more complete understanding. I would utilize this as a teacher and use it as a tool in the reverse. I would have kids repeat things to try and help it stick. I would ask them to repeat back in their own words. I would have them repeat to a friend or try to teach the concept to each other. I would listen to how they repeated and ask clarifying questions to make sure I really understood where they were at in their learning. Now I can't take full credit for these teaching strategies because I also learned them in my teacher training college courses, but I can say most teachers I know and have worked with don't quite understand the significance and mechanisms of how and why these strategies worked. Many teachers did not utilize them fully or very often. My TBI also helped me understand that there is usually more then one way to do things. This understanding is also highly useful in working with children. It is important for them to learn if we actually want them to become creative problem solvers and not just rote conformist robots.
Here is my theory: A TBI works something similar to a child's brain because a child's brain is still firing all over the place and, as their brains develop and learn, their little brains find the fastest most efficient routes in processing and preforming different tasks. Kids' brains are working to develop the super highways of processing that adults have developed so solidly. Adult brains have learned to work so efficiently, taking those same neuro-pathways, that we know a whole lot about what area of the brain is is working and responsible for certain tasks. Adult neuro-pathways are so established and so efficient at the job they do that it can become extremely difficult for people to think outside the boxes that they were wired and trained in.
But the TBI brain has had to learn neuroplasticity. When one part is injured that is best suited for that task our brains do their very best to find a different way. So in that way, our brains can function a bit more like a child's developing brain.
And that is not always bad thing.
But it is terribly misunderstood.
Even by the professionals within the industry. Which is why they really should listen to us in more respectable ways. We are not stupid, in fact on the contrary, our brilliant broken brains can make connections that non-broken brains don't even remember exist. Sometimes at hyper speeds.
Mirror neurons are another beautifully brilliant tool we have... that sometimes causes problems, as we sometimes are not fully aware of, why, how and how much we are mirroring. We can also become easily sidetracked and forget where it is we were really trying to go. This can be good for those around us if they understand it, but it can also lead to easy abuses of us. We can be redirected fairly easily but the emotions of the other person. I believe this was happening to some degree with neurologist Dr. Untangle as her preconceived notion frustration or her misunderstanding me impatience definitely took me off track.
This happened very definitely with that one guy, Dr. P-Dr. He-Dr. Jackass or what ever I call him these days- I was easily derailed from what I was desperately trying to show him and the subject that I knew needed to be addressed, the very reason I was saying, "I can't loose you right now," because I was reacting too extreme, there was something more going on with my head, and I was, in fact, manic... But mirror neurons really liked that man, and went easily off track with him.
And TBI is likely why. But I had been misdiagnosed, it was being called a concussion, which is not small thing, but is not the same as a permeant, visible on MRI, damage causing TBI.
I can explain that too.
But mostly, if it had been recognized for what it was in the first place by the first doctor, I would not have been fired from the school I worked at, at least not the way I was, and many things would have been handled very differently, possibly even how I was handled by Dr. Jackass Perri. Sorry, Dr. Jackass, that you have progressed to that identifying tag, but I am sure you understand why and YOU KNOW YOU DESERVE IT... which actually brings me to another not-so-negative thing about us TBI'ers- I can call you that and mean it but also still love you and easily forgive with a willingness and ability to move past it for the good of all involved. We don't hold grudges the way others do. Maybe not at all. Sometimes maybe we should. I digress, but we have been broken open and we know and understand very well: human foibles, that people actually can learn and change, and that people are not as bad as the mistakes they make.
Your welcome. Also, we are either not as, or more, smart ass then we can come off... but we are definitely not as arrogant as we can seem. And these things make me laugh, maybe in my broken brain-laugh at inappropriate times- kind of way. And maybe only I and my broken brain friend Renée actually get my sense of humor, but that's okay with me.
And I just have to add one more thing about those mirror neurons we TBIers are extra sensitive to, If you think we are being a jackass or stupid it probably has more to do with those mirror neurons reflecting back you back.
Friday, May 15, 2020
Your therapist: The scariest person you will ever meet
Dr. She is now officially the scariest person in the world to me.
And here is why:
Fortunately for me, my husband recorded the appointment that went so badly with Dr. Neurologist. Feeling hopeless and alone again I sent an email to Dr. She and asked her if she would listen and help me process it. Please help me understand what I am doing wrong. Help me "untangle" all of this.
Dr. She responded very quickly saying she would, moving my appointment up and telling me it's okay and that I don't have to figure this out alone.
I don't have to try to figure this out alone...
"that's good says my husband"
and it is... but she is the only person who has said this to me.
This is why we get attached to therapists.
We need help and we need people to care enough to help us figure out the hard stuff
but too many of us don't have that
add the depth and complexity of all that makes me me, TBI, intelligence, concern for others, ...bipolar...
and not many people are willing to say that
far less mean it for longer than a day.
But honestly, I think that is the first time in my life, ever, that someone has said this to me...
Except maybe my one friend who has tried to be there through this. She has said I don't have to go through this alone. That is so very nice too.
It is nice to know you are not completely alone when you are so very alone.
But Dr She is a paid for service. and I don't know how long she will really stick around... and now she is the scariest person in the world to me
because I need her so very much...
Just like how I so desperately needed Dr. He and his expertise... when he needed me to be
Nothing
It's scary.
This is very, very scary.
And here is why:
Fortunately for me, my husband recorded the appointment that went so badly with Dr. Neurologist. Feeling hopeless and alone again I sent an email to Dr. She and asked her if she would listen and help me process it. Please help me understand what I am doing wrong. Help me "untangle" all of this.
Dr. She responded very quickly saying she would, moving my appointment up and telling me it's okay and that I don't have to figure this out alone.
I don't have to try to figure this out alone...
"that's good says my husband"
and it is... but she is the only person who has said this to me.
This is why we get attached to therapists.
We need help and we need people to care enough to help us figure out the hard stuff
but too many of us don't have that
add the depth and complexity of all that makes me me, TBI, intelligence, concern for others, ...bipolar...
and not many people are willing to say that
far less mean it for longer than a day.
But honestly, I think that is the first time in my life, ever, that someone has said this to me...
Except maybe my one friend who has tried to be there through this. She has said I don't have to go through this alone. That is so very nice too.
It is nice to know you are not completely alone when you are so very alone.
But Dr She is a paid for service. and I don't know how long she will really stick around... and now she is the scariest person in the world to me
because I need her so very much...
Just like how I so desperately needed Dr. He and his expertise... when he needed me to be
Nothing
It's scary.
This is very, very scary.
Miss Under Stood here -present... wait, what was the question again?
New Neurologist.
I was hopeful. I had decided I like her. I gave her lots of credit....
I should know better than to do that by now.
Basically, I can't start climbing the mountain of dealing with my TBI until I untangle the mess that was made of me by the Neuroscience Institute.
That seems to be her prognosis.
But then when I ask questions because I need clarification and because I AM trying to untangle that mess she tells me there is no organization to my thoughts and that I am talking in circles.
But then she has the dates wrong about when the MRI was done in relations to the accident.
And she took the first 14 minutes to explain, in circles, that it is not her policy that I cannot record our appointment and that she is not even sure why that is a rule and she didn't think to ask, but she is basically on the same page as me, and it is not her policy, and she probably should have asked.... and around and around for a good 10-15 minutes...
So am I really talking in circles or is this a bias and a stigma, that goes along with the location of the TBI damage? She suggests it is.
And I ask for clarification on this, but it is to tangled with the other stuff, for her to be able to clarify, I guess...
And then I am talking in circles again... when I thought I was rephrasing my question...
and around and around it goes,
she can only address the tremor and monitor, but she has no answers
because she didn't know me before and it is too entangled...
and I have to untangle it, which is what I am trying to do,
and she has not even explained encephalomalcia with gliosis or why the other neurologist was worried about seizures...
She is confused by some of the questions I ask for clarification on, things that concussion doctor had told me. She is concerned about how I was treated and wonders if she needs to report things but because I have hired a lawyer (who, at this point, is clearly not doing anything) and I have talked about reporting -which hasn't happened because I have been waiting on the lawyer who clearly isn't doing anything; and I tried to explain that too but she was too glad to feel that she did not need to report, she says she will and has no problem with doing that, but again she thinks it's already being handled.
Oh what an unmanageable mess this is turning out to be. She does not seem to understand that we need to start at zero with my understanding of the TBI since it was obviously misdiagnosed. She at least confirmed that, that the damage that I have would not have been from a mTBI, aka concussion, but rather from a full blown TBI.
sigh...
At least that.
And my head is hopeless and tired again. and what the hell does it all mean??
TBI is irreversible I can just learn to accommodate, not heal, like Dr. Concussion said was possible at the end when she was telling me there was a good chance my TBI's would not even show up on MRI, I think that was clarified. Does location of injury effect mood stability? She seemed to be saying it does but my attempts for clarification on that were again, misunderstood...
My husband can't explain what I was not getting but he is still mad at me for not getting it...except "I'm not mad" he growls ... And around and around it goes... when it stops no one knows.
loops and holes and the growing noses.
Oh, So that's why their noses were so big! At least some clarification there. At least that. But man, the confusion in trying to treat and even work with me because I am still trying to get clarification on what the hell happened to my head from those who can't answer because they "weren't the ones treating me at that time" and the the medical records received are quite convoluted and defamatory.
Yes, misdiagnosis, "defensive medicine," and false allegations and accusations to cover are a problem.
sigh and bye
I was hopeful. I had decided I like her. I gave her lots of credit....
I should know better than to do that by now.
Basically, I can't start climbing the mountain of dealing with my TBI until I untangle the mess that was made of me by the Neuroscience Institute.
That seems to be her prognosis.
But then when I ask questions because I need clarification and because I AM trying to untangle that mess she tells me there is no organization to my thoughts and that I am talking in circles.
But then she has the dates wrong about when the MRI was done in relations to the accident.
And she took the first 14 minutes to explain, in circles, that it is not her policy that I cannot record our appointment and that she is not even sure why that is a rule and she didn't think to ask, but she is basically on the same page as me, and it is not her policy, and she probably should have asked.... and around and around for a good 10-15 minutes...
So am I really talking in circles or is this a bias and a stigma, that goes along with the location of the TBI damage? She suggests it is.
And I ask for clarification on this, but it is to tangled with the other stuff, for her to be able to clarify, I guess...
And then I am talking in circles again... when I thought I was rephrasing my question...
and around and around it goes,
she can only address the tremor and monitor, but she has no answers
because she didn't know me before and it is too entangled...
and I have to untangle it, which is what I am trying to do,
and she has not even explained encephalomalcia with gliosis or why the other neurologist was worried about seizures...
She is confused by some of the questions I ask for clarification on, things that concussion doctor had told me. She is concerned about how I was treated and wonders if she needs to report things but because I have hired a lawyer (who, at this point, is clearly not doing anything) and I have talked about reporting -which hasn't happened because I have been waiting on the lawyer who clearly isn't doing anything; and I tried to explain that too but she was too glad to feel that she did not need to report, she says she will and has no problem with doing that, but again she thinks it's already being handled.
Oh what an unmanageable mess this is turning out to be. She does not seem to understand that we need to start at zero with my understanding of the TBI since it was obviously misdiagnosed. She at least confirmed that, that the damage that I have would not have been from a mTBI, aka concussion, but rather from a full blown TBI.
sigh...
At least that.
And my head is hopeless and tired again. and what the hell does it all mean??
TBI is irreversible I can just learn to accommodate, not heal, like Dr. Concussion said was possible at the end when she was telling me there was a good chance my TBI's would not even show up on MRI, I think that was clarified. Does location of injury effect mood stability? She seemed to be saying it does but my attempts for clarification on that were again, misunderstood...
My husband can't explain what I was not getting but he is still mad at me for not getting it...except "I'm not mad" he growls ... And around and around it goes... when it stops no one knows.
loops and holes and the growing noses.
Oh, So that's why their noses were so big! At least some clarification there. At least that. But man, the confusion in trying to treat and even work with me because I am still trying to get clarification on what the hell happened to my head from those who can't answer because they "weren't the ones treating me at that time" and the the medical records received are quite convoluted and defamatory.
Yes, misdiagnosis, "defensive medicine," and false allegations and accusations to cover are a problem.
sigh and bye
Wednesday, May 13, 2020
Discriminating taste
I have to confess something, something that catches me by surprise occasionally and frustrates me about me.
I hate being stereotyped and stigmatized. I hate being discriminated against for my ailments. I hate feeling the subtle and not so subtle changes in attitudes and perceptions that some people manifest when they find out that you have a "mental illness" or mental health related issues.
I hate it so very much and it is especially difficult when you have the intelligence to know how you are flawed and the intelligence to pick up on the discrimination, ostracizing, stigmatizing etc.
But the confession... I do the same thing.
I am prejudice against my own disorders, against my kind.
...And I don't like being lumped into the same category as those people.
I know a few people who have bipolar and I don't like some things about them that I know are directly related to the illness they have. I wonder if I am a bad person for feeling these things and even wonder why I feel these things. I am scared of them myself half the time. Or am I disappointed? Disappointed with how they handle or how I do? Or am I disappointed that even with them I can still offend and not fit in?
I wonder if this is normal for all of us that have these problems?
But I also sincerely wonder if maybe I really do not belong in the same category because mine seems to be directly linked to TBI. I wonder if a strictly biological bipolar may be different than a TBI bipolar?
Manic, I fit the definition of. I was manic. But I did not loose touch completely and I was composed well enough to hide it. Or had I just conditioned and trained myself well enough? and that is why I feel some annoyance and frustration with others?
But I also think there is some association to the level of breaking and the age of the breaking. As I have said, prior to this, I think I had not gone much above hypomanic. And I am much older, with much more experience under my belt... I have also chosen to distance myself from those things that can be triggers. I don't embrace a trigger so easily. I'd rather not be in that consent battle. It is something people in my family and many of my local cultures and subcultures really do not understand. It is why I am not so stalwart and involved in the church that I was raised in. Spirituality and religion can be very slippery slopes for a delicately balanced brain... I have found more peace and stability with some distance and yet that makes people very uncomfortable. But my overly spiritual and scriptural associates that have similar issues I feel pain and embarrassment for... and I find myself feeling my own discriminating feelings...
Maybe I am projecting my own insecurities onto them? Maybe it is a fear of what I may actually be or come to be?
My mind and heart want to figure this out and be at peace with them and me. Be at peace with my association.
And yet, I don't really want to think about it right now at all. I just want to be a fun mom again. And I want to have friends again. But I also do not want to be that me again. I want to be more free and more accepting of all that I am. I want to love my perfectly imperfect.
...and truthfully, I want to feel loved, valued and accepted.
I suppose I have some work to do still.
And who is still actually reading this anyway? And why?
Check in now and again if you don't mind. I'd love your feedback
I hate being stereotyped and stigmatized. I hate being discriminated against for my ailments. I hate feeling the subtle and not so subtle changes in attitudes and perceptions that some people manifest when they find out that you have a "mental illness" or mental health related issues.
I hate it so very much and it is especially difficult when you have the intelligence to know how you are flawed and the intelligence to pick up on the discrimination, ostracizing, stigmatizing etc.
But the confession... I do the same thing.
I am prejudice against my own disorders, against my kind.
...And I don't like being lumped into the same category as those people.
I know a few people who have bipolar and I don't like some things about them that I know are directly related to the illness they have. I wonder if I am a bad person for feeling these things and even wonder why I feel these things. I am scared of them myself half the time. Or am I disappointed? Disappointed with how they handle or how I do? Or am I disappointed that even with them I can still offend and not fit in?
I wonder if this is normal for all of us that have these problems?
But I also sincerely wonder if maybe I really do not belong in the same category because mine seems to be directly linked to TBI. I wonder if a strictly biological bipolar may be different than a TBI bipolar?
Manic, I fit the definition of. I was manic. But I did not loose touch completely and I was composed well enough to hide it. Or had I just conditioned and trained myself well enough? and that is why I feel some annoyance and frustration with others?
But I also think there is some association to the level of breaking and the age of the breaking. As I have said, prior to this, I think I had not gone much above hypomanic. And I am much older, with much more experience under my belt... I have also chosen to distance myself from those things that can be triggers. I don't embrace a trigger so easily. I'd rather not be in that consent battle. It is something people in my family and many of my local cultures and subcultures really do not understand. It is why I am not so stalwart and involved in the church that I was raised in. Spirituality and religion can be very slippery slopes for a delicately balanced brain... I have found more peace and stability with some distance and yet that makes people very uncomfortable. But my overly spiritual and scriptural associates that have similar issues I feel pain and embarrassment for... and I find myself feeling my own discriminating feelings...
Maybe I am projecting my own insecurities onto them? Maybe it is a fear of what I may actually be or come to be?
My mind and heart want to figure this out and be at peace with them and me. Be at peace with my association.
And yet, I don't really want to think about it right now at all. I just want to be a fun mom again. And I want to have friends again. But I also do not want to be that me again. I want to be more free and more accepting of all that I am. I want to love my perfectly imperfect.
...and truthfully, I want to feel loved, valued and accepted.
I suppose I have some work to do still.
And who is still actually reading this anyway? And why?
Check in now and again if you don't mind. I'd love your feedback
Tuesday, May 12, 2020
If you want to pull the wool you might destroy the sweater.
"It is all three, isn't it?"
I still talk to that place in my heart that he allowed me to keep him.
Allowed
there just may be more to that than you (my blog audience) know.
I have tried to kick him out of my heart but he knew how to root himself deep and I was so broken that at times those roots that broke me were somehow the only thing holding me together. It is a strang place that no rational and fully stable person can ever really understand.
... and I will be made out to be crazy for the things I am not crazy for
Even after and when they deny the crazy that I was...
November 12, 2018
I made a mistake. I talked about my husband. I explained how what we (Dr. P and I) had been working on had helped me in my relationship with my husband.
He was not happy about this. He changed on me. The spark in his eyes was gone. He was cold and distant.
One of two possibilities:
He had developed feelings and caught him off guard
Or
It confirmed I was non-compliant with his efforts to subtly turn me into his own personal toy
Either way, he was done with me.
But with a strange plea of "don't disappear on me completely"
to which I pointed out "you are breaking up with me and I am not happy about it"
Then he, "unfortunately there is still a human element to all of this."
and later, "I told you not to try and solve this."
I was not compliant again.
and he was scared.
I could see it in his face. I could see it in the paleness and the picked off scabs of a stress break out. I could hear it in his replies, implied but neither confirmed nor denied. Rehearsed or influenced by some of the same articles I had found and read about transference and countertransference?
I could hear it in his struggle to regain the balance of power.
I could hear it in his over compensating when he looked me straight in the eye and declared, "I am not scared of you." said the way every person does when they have decided to confront their fear and have to lie to themselves until they start to believe their lie.
I could hear it is his chastising, "that's not funny," when I laughed about the insanity of a bipolar personal contact that once, while in a manic state, believed one companion to be God and the other to be the devil.
I could hear it in his direct, loud and firm command to "stop emailing me" and in his back peddling softened reply of "they are too deep and they can get me into trouble" when I reacted in a way he may not have expected -a way that suggested I have dealt with that kind of forcefulness plenty and I may not be so inclined to respond the way he'd hoped since I knew those types of bold threatening tactics too well.
I could hear it especially loud and clear in his final statement, "so we can agree to a clean break?"
And yet, still he could not resist testing those boundaries, checking to see if maybe I might be more compliant or more interested, and maybe just maybe, after the confessions of the depth and complexity to my transference and the the suggestion of mania, maybe just maybe, he hoped that I might manifest those with the paradoxically desired but condemned sexual advance by the patient.
I could see these.
I picked up on this.
As childish and naive as I was in those moments of managed manic magnificence I picked up on the manipulations in his playfulness, the moments when he forgot he was scared, and could not resit playing with the child that I was, mistaking me for an adult themed toy. Tempting. It was far too tempting
I could see these.
I picked up on this.
As childish and naive as I was in those moments of managed manic magnificence I picked up on the manipulations in his playfulness, the moments when he forgot he was scared, and could not resit playing with the child that I was, mistaking me for an adult themed toy. Tempting. It was far too tempting
and it worked to his advantage (it always does, he knows these games well and plays them regularly, I have seen it more than with just me)
Control, he regained by playing, turning me into a game again. Because I trusted and loved.
But my instinct was awake and bold. It took liberties and spoke for me at times, long before I knew what I meant.
And my will to survive, my fight and flight responses heightened by the risks and threats that the mania was immune to, they picked up on so many things. My heightened senses and rapid processing working at superhuman levels picked up on every subtlety, nuance, inflection, movement, energy... the entirety of the situation would replay in my brain for months and months to follow, not missing anything in my brains quest to solve what was happening to itself and why. The mysteries had to be solved. His "I'm okay with being wrong" was not okay in his misdiagnosis.
Was the missing of the mania intentional? Did he break me? Or was I already broken and breaking? Had he developed feelings of reciprocated magnitude and intensity or was it the mania (that he had overlooked) suggesting this to my desperately-trying-to-settle brain? ...Or was he really and truly a diabolical grooming therapist that dropped me when he saw that I was not compliant and I broke because of it? Did I break because, even though I was not physically compliant, the grooming had worked on an emotional level and suddenly grieving the loss of him was too much for the physiology of my brain since it was coinciding with PTS (post traumatic stress), TBI realities, and a flooding of returning memories?
"I told you not to try and solve this"
"I don't need more friends"
"I don't believe in forever anymore"
"my life is very complex right now"
"I could lose my license because of you"
"...I will never have anything to do with you outside of therapy."
"I would have to agree to it"
"You only see what I allow you to see"
"I don't do well with blurred boundaries"
"why? are you a stalker?"
"what we have had is a beautiful thing and I would not want to fuck that up." (really, who says that?)
"I connect easily with people"
"I am okay with being wrong"
"I am going to let it burn out and I suggest you do the same"
... And I feel like, in his cryptic way, he may have been trying to warn me, that he would do whatever he had to, to hide and cover anything that would reveal who he really was and what he really was up to... or was it just that he would cover anything that could potentially threaten his livelihood...
I would love for clarification- I am not afraid of the conversation and I am not the one hiding or trying to hide the truth.
But... I will repeat, the best liars hide their lies in the truth.
Which makes me think
"It is all three, isn't it"
Grooming, countertransference and the breaking of me and then denying it (mania). ... maybe it is more like 4 or 5 things, 4 and 5 being a whole lot of mischief.
"You only see what I allow you to see"
Oh, but I see so much more and I see through you- And he knows it. He makes the command in hopes that his statement will pull the wool curtain over my manic heightened perceptiveness.
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