continued...
I am a bit distracted by some things I have been hearing and by feeling so much better that I am not sure how well this "continued" will be, so how about I get that off my mind first. (If it were on my chest I'd probably keep it there because I wouldn't mind a few pounds added there ;)
COVID, -and really it's probably a good lead in-
I am hearing people say things like, "it is now the pandemic of the unvaccinated," and, "it's all those unvaccinated who are out spreading the Delta variant," etc.
I am also hearing that people who are vaccinated are still getting COVID. Although they are saying their symptoms are much more mild and they are "not the ones getting sick and dying from it." (and I think that is good)
Now here is my rhetorical question for you: Isn't it more likely the virus is being spread by those people who aren't sick enough to know they are sick, or that don't think they are sick because they have been vaccinated, than it would be by those who are "so much more sick, in hospitals, and dying?"
My hope is not to increase divisiveness, rather to get people thinking about the divisions, how they are effecting each of us personally, and how that is effecting the way we speak of and treat others.
When I look at the big picture I find myself believing that the prolonged mass hysteria has created far more problems then it has solved.
There of my chest mind... -hmm, maybe this is why my cup size is what it is? Bad joke, but I think I'm funny, so I'm leaving it.
Let's see, where did I leave off. um I think I need to go back and reread. I will return...
oh yes,
Monday, as in 5 days ago, I am sick. I had to cancel the next 2 days of a 4 day substitute teaching job. This makes me sad, but everything hurts, especially my abdomen area and the fever is hovering between 101-102. I am now wondering if all of the drugs are causing ulcers. My husband suggest I take an Omeprozal, an antacid that is "sure not going to hurt anything." I am reluctant, but decide it's probably a good idea. So I stay home, mostly in bed, drink lots of water, sleep most of the day, eat what I can and what I dare, keep shivering in check, and monitor my temperature closely (because I am not taking anything for it). "Did I mention cloudy urine?" I don't remember... My brain is struggling with focus.
The fever never breaks and my abdomen still hurts enough that I question if I should even take my Seroquel (mood stabilizer) that night. I opt for about half the regular dose and sleep. I sleep surprisingly well and the sciatic pain in my leg has eased up to the best it had been since the onset. But, with the exception of the lessoned leg pain, the next morning, I still have a fever and all of the aches, pains, and other symptoms. "Should I go in? Should I wait? Go in? Wait?..." and "who should I go see."
I opt to go into my primary care doctor but, long story short, they are so concerned about it being COVID that they do a virtual car appointment from the parking lot. Even though I have the results of the COVID test and it is the PCR test that Dr. says is more accurate, she worries I was tested too early. She wants to do another test. That is fine, but for them it will take at least 24hrs to get the results and there is other stuff going that I'd like them to consider.
She decides to prescribe two antacids for what sounds like peptic ulcers but insists this does not explain the fevers so she reluctantly decides to have me come in and give a urine sample after they do the COVID swab. I ease her mind by assuring I'll double mask. I tell her I have two pre-diabetic sisters and, at my sisters request, I ask if they can check for that. All test's done I am leave and await to hear the results. Sever hours later the MA calls to let me know that there is in fact evidence of infection so they are sending urine for more testing and the doctor wants me to start on an antibiotic. I ask about blood sugar and to my relief that is fine. It's most likely a UTI she tells me, the further testing will tell more. I actually have to look it up to know that UTI means urinary tract infection because I have never had one before. Looking it up, I learn they can be bladder or in the kidneys and from what I read, mine is definitely a kidney infection if it is a UTI.
That night, with dinner I take the one antacid, Sucralfate, that the pharmacy filled and the antibiotic, Ciprofloxacin Hydrochloride, with dinner and then my regular dose of Seroquel at bedtime. Going to sleep I have weird hallucination style dreams that are not good. At one point I think I am having seizure-like convulsions, but my husband said I didn't move. Are these lucid dreams? Bad dreams, or hallucinations? I am not sure but I have to keep pulling myself out of them and trying to alert my husband to pull me out. He touches my arm and I am awake/normal awake again. I tell him I need him to keep one hand on me. He puts his hand sweetly on my shoulder but the sleeve of my t-shirt prevents skin to skin contact. I need skin contact I tell him so he keeps a hand on my arm. This is enough to keep me grounded and I am able to fall asleep into normal sleep for the remainder of the night.
This is an interesting thing to me. I have experienced this phenomenon before, and I find it fascinating. My theory is that the electricity omitted from another person can literally help ground the misfiring electricity happening in the person (me) that is experiencing some sort of chemistry imbalance. I am grateful my husband is there and can tolerate the adjustment to his sleeping position long enough to get me back and keep me back until my body is able to settle into a safe normal sleeping cycle.
The next morning I feel like garbage. The fever seems a little better but I still feel terrible. With breakfast I take both of the new meds again and Tylenol and resolve to read the pharmacy info when I can. As terrible as I feel I have to get to my appointment with the orthopedist. He is nice and says while it all may be linked there is not anything he can due until the infection is taken care of. I forget the name of the medications. I can hardly think until the Tylenol kicks in, which has been taking about an hour and a half. He says it's okay that I don't remember although in hindsight I wonder if he would have questioned the antibiotic chosen. He was a bit surprised they did not draw blood. He double checks my neck just to be sure and makes sure I understand that meningitis is not entirely off of the table yet. I am glad to have him that day. Two weeks and I'll followup, make sure things are healing in the right direction. He directs me to be sure and follow up with my primary care provider about the infection, whatever it may be.
Later I get a notification from Costco pharmacy that my other antacid prescriptions is filled. Oh, crap, now I really need to read, because I was not so sure about taking the one I did, but did because it I thought the Dr. had reduced it to only one. Why this makes sense... no time to explain and probably it mostly doesn't but my brain was not functioning 100%.
That afternoon, I finally feel well enough to tackle the currently heavy and difficult task of reading pharmaceutical papers. I read the antacid stuff first. A few things concern me and it is the one I don't necessarily need to take so I decide I won't take that unless the ulcer symptoms worsen. However, I am a little bothered that it so adamantly states you should not take this with other medications because it prevents the absorption of other medications. "Great," I think as I realize I most certainly would not have gotten the full dose of the antibiotics I had swallowed at the exact same time. I am a bit annoyed that neither the doctor nor pharmacist had pointed this fact out. However, my annoyance quickly turns to relief as I read the headline warnings of Ciproflaxen that include tendon problems, nerve and nervous system problems... What the @#%*?! Now I know there are a ton of different antibiotics, why on earth would the doctor prescribe the one that starts with warnings of the exact issues that were the catalyst of this whole mess in the first place??? I am sure she knows that sciatic is a nerve problem and I did explain that my foot is still numb.
Now I am a mess again and not sure who to call at all. I don't trust that doctor because she was clearly too concerned about COVID. I reach out to my psychiatric PA, because I trust her when it comes to medications and I don't know what else to do. It is getting close to her closing time and she is busy but the receptionist will get her the message. I call the family care provider office too and am able to talk to the MA I had seen (for the COVID swab, finger prick, and to lead me to the bathroom). She is not super helpful and suggests I "just take it until we know the results of what type of infection." Fortunately she is going to get a message into the PA on staff right then, but warns me I'll only hear back from him if he is comfortable addressing my issues, otherwise I have to wait until tomorrow what the Dr doctor is in. Whatever. "Oh," and "what about the COVID test," I have to ask. It's negative. Of course.
The PA on staff is not at all unnerved by taking on whatever my issue is after all he does work full-time at the well known IHC hospital nearby. I am jaded not impressed, but I don't tell him so, rather I think a jaded little less of the IHC facility because this PAC has to have a second job. I ask about the medications. He explains, it's a heavy hitter and for as sick as I am I need a heavy hitter. At least they are recognizing that I am very sick for me. He agree's it's most likely a kidney infection and he explains those other antibiotics won't even get to the kidneys or something like that.
"Okay, but I am not okay with this medication."
It is a bit of a lengthy discussion about it and I do understand what he is saying but I also know I already have nerve damage from the hip surgery and a current significant nerve problem and I am just not willing to take the risk with this drug. Plus, the weird hallucination stuff and the fact that I have had tendons injuries and operated on recently ... nope too risky. I have to explain that I have been misdiagnosed enough times in the last few years that I have learned to trust my gut on things and this is one of those times that I have to trust my gut. When he realizes I will not take anything until we get the results if he doesn't change the medication he finally is able to think of an alternative he feels is heavy hitting enough and that does not have those same possible side-effects. It's called sulfamethoxazole. He seems to think it is an even heavier hitter, but none of the side-effects he knows off sound like anything I can't handle. "I'll take it," I agree.
When I pick it up from the pharmacy I carefully drill the pharmacist. Nope, no problems he insist. He tells me he thinks this is a better medication. It has none of those well known significant potential side-effects of the ciproflaxen and its a better medication he assures me. Satisfied (and I will admit a bit validated) I let him get back to his dealings.
The next morning I still wake up with the pounding headache but the fever has finally broke and I am starting to feel better.
It's absolutely amazing to me how well and quickly antibiotics start working when they are needed and I am glad to have them. But, to date, I still haven't heard anything on the "further testing."
So here are the things I have learned: As mentioned in the first half of this story, you really need to trust your gut and be your own advocate right now in the medical industry. Later my mom explained, before she knew what I was taking, that she was certain Levaquin was what caused her neuropathy. When I did tell her what I was taking she was so glad I had trusted my gut because it's in the same family. I am glad too, but it is kind of a shocking oversight for a medical provider to make. While I will admit I find it frustrating and annoying that doctors are so focused on COVID they are missing other problems I am aware of the stress they are under and, like the going-on-13-hours urgent care doctor, they are over worked right now. So I can be patient with that.
But probably the most important thing that I learned is that I AM NOT SUICIDAL. I am so glad to know this. I can now positively and confidently state that those symptoms, when they happen, are not coming from me. They are not what I believe or what I want. They are not my thoughts and thinking. They are simply symptoms of illness and the ills of society. I know this because I did recognize that, if I truly wanted an out, this was a very good opportunity for that. But I did not want that out. I want to live and I know I still have a lot left to do and a lot I can do. Between this near-enough experience and the heartbreaking loss of my dear friend and mentor -who has always had confidence in me- that ended up passing away on my deceased younger brother's birthday I feel a renewed lease on life and confidence in my goals.
First thing? File a lawsuit against those who are (amoung other things) discriminating, encouraging discrimination, and causing emotional distress when they know they are. Why? Because that is one step in the right direction, one voice, one person speaking up and saying: If we want to change the number of suicides in this country we have to STOP treating people this way and stop allowing people to be treated this way. Especially by those within the fields of psychology, education, and medicine and within our justice systems.
Now I am not sure if I have covered all I wanted to or more than I meant to, and for whomever has been reading and anticipating, I apologize for the delay but now I bid you good day.
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