Rules are made to be...?

Here is a theory:
Rules are made to for the masses and ideally to protect the masses.
However there is always an exception to the rule.
Should we ignore the exception and force the rule? Or allow the exception only for the exception?
If we allow the exception we compromise the rule.
If we do not allow the exception we compromise the exception.
But if the exception is the ideal the rule is artificially attempting to replicate or protect from abuse then should the rule be reconsidered?
If we do not allow for the exception to the rule we risk destroying or defiling the exception.
We may even risk the destruction of the rule if it becomes known that enforcing the rule abused the exception.
This could result in the untimely changing of rules that are still needed for the majority.
But when the majority becomes the exception to the rule and the rule is hurting large numbers of people then the rule is no longer noble but now an easy abuse of power and the rule needs changing.

Psychiatrist vs Psychologist

The difference between a psychiatrist and a psychologist is that
a psychiatrist prescribes drugs
while the psychologist is the drug.

Confession

okay...It's confession time
I am dragging my feet and procrastinating.
I did not want to go this route but realized I need to let go and move on.
But the problem is I really don't want to. I don't want to let go.

I feel cheated
I feel so cheated
not JUST from the professional and institutional side of this but
from the the freaking romantic side of this...

ugh... there I said it.

November 26, 2018: I'm fighting so hard to keep him, however I can. I feel such a powerful and profound connection that I know I don't fully understand, and have not been allowing myself to understand, but I want to. I want to be able to know this man for real, to see what this connection is; to know if this connection is real or just a side effect of treatment, healing, my broken brain and/or the psychology he has been practicing with me.
We can be friends... I don't remember how but I was pushing hard enough for it that he was loosing his composure. "I could never really open up to you" "I would always want to protect you"
"what is wrong with that?" I think but do not say. the feeling is mutual.
"and if I were to open up to you and allowed my self to be vulnerable with you I could not bare you leaving" his scrambling thoughts quickly fall from his mouth and I am not sure he meant to say that.
...but he did, and I heard it. and while I know it could mean something different than I think, it is very powerful
...it keeps me coming back.
he is expecting me to do what he himself cannot.
but even more- in that same moment, the tragic irony is; he saying that he just did opened up to me and became vulnerable... and now I cannot leave him. because he could not bare it.
and I don't want to.
I don't want to abandon him the way his wife or some other significant other had. I don't want to abandon him because I know what it feels like and I don't want to hurt him like that.
I don't want to abandon him the way he abandoned me.
...especially if those feelings are or could be real.
I am just now realizing this. and it is silly and messed up because he is so entirely gone and was so clear in that he would be.
So my confession. I guess I don't want to let go and I want to believe in the fantasy.
...To bad baby girl -it's time to get over it.
I guess.
...and I'm dragging my feet... not wanting to let go...

Validated

Yesterday I had my post op appointment for my ankle. My beautiful surgeon got called into an emergency surgery so I saw his assistant. She has been assisting in these surgeries for a very long time; part of that time in the military. She was happy to inform me that my doc was one of the best. I always like to hear that.
When she saw me she remembered my surgery right away -didn't even have to consulate the report to remember.
"Oh, I remember you," she says,
"you were the worst ever!"
No, she did not say that, it was "yours was the worst I have ever seen."
"And the surgeons," she tells me (or least she was pretty sure he had also said it was the worst he had seen, definitely one of, if not the confirmed worst)
She explains how bad it was and how it must have been that way for some time.
"about a year and I half?" I ask.
"Yeah, that is a long time" she confirms.
She explains that there was even a second tear that the MRI didn't pick up because of how bad the tendonitis was.
Remember yesterdays post where I mentioned how all three doctors I saw about it were surprised by strength and my stability?
She stopped herself as tears started to well up in my eyes. "Oh no, what did I say wrong?" she asks.
"Nothing"  I try to explain.
It is validating
and I am glad my husband is there to hear it.
It's Validating for so many reasons and yet so painful also.
It is symbolic and parallel to what is going on with me...
It is painful because I know it could mean some bad things that I did not realize it was so bad. That I did not feel enough pain to get me in sooner.
...and I had just seen the wrist doctor in the same office who suggested I might want to consult with a neurologist about the weird shaking in my left hand.
Maybe I have been working a lot harder than I give myself credit for to not be a burden and a complainer. To be independent and strong.
The overlooking and neglect of it is very much tied to and paralleling TBI to me... and maybe physiologically more than I know. Which honestly scares me.
"Even if I were open to that I'd have to be willing to take that one" he said at one point when I was trying to convince him that I was worth investing his time in. I was and still am not entirely sure what he thought I was asking him to be open to. I am not entirely sure I knew or know what I was asking him to be open to... but what I heard was that he was not willing to take me on because he knew too well the type of burden I might be. It cut me deeply but I did not show it and I have tried to ignore it, especially because logically I know I don't really know what he meant by that..

But I know that I am damaged. I have brain damage. And maybe it is worse than I know. It is a fear I think I really hide and have hidden well. I am afraid of aging and my life feels so much shorter because I know I am more likely to have problems due to it as I age... sometimes I fear that I feel it already. It is part of why the car accident concussion was so traumatic. I don't feel like I can afford it.
But that is fear. and maybe, hopefully that is all it is.
It is my bigger fear manifesting in my ankle. And it is traumatic too because the ankle got overlooked because the mTBI was so much the bigger problem. I needed to do everything I could to take care of that one. And ironically, the exercise and dealing with one thing at a time that were prescribed by the head doctors was contributing to the ankle problem.
These invisible injuries can be so complex.
And I am learning so dang much about myself when I thought I had me figured out. I thought it was everyone else I needed to figure out, because I am introspective and I tend to analyze myself first and what I can do and what my part is or was. I try to fix me first.
...and I know I need to stop trying to fix the broken parts of me by myself, yet, her I am.
I thought I knew how to ask for help. I thought I knew how to say no to people.
...ahh life. The more we learn the less we know.

how to handle the perfect storm

I find myself wondering about perfect storms and how they have the ability to reshape the world. Through them humanity at its worst can come out OR humanity at its best can come out. It all depends on how the "victims" of the storm choose to handle it.
They can help each other to rebuild or they can fight for their own survival.
In rebuilding they can improve upon or completely reshape what had been destroyed.
Who will you be?

I also find myself wondering about how we perpetuate our own cycles of neglect and abuse. How do we break those cycles? We may think we have, only to find ourself there once again... was it them or is it me this time? and often the abused becomes the abuser or the neglected becomes the neglector.
and I don't want to be either.

The perfect storm

I think that I might be the perfect storm.
This will be a disjointed post of a whole lot of stuff rattling in my brain that I just want to get out quickly, so I can move on and be "more productive"
?what does that really mean anyway?
I get my stitches out today; post op on my ankle. "Will you have a scare?" my daughter asked.
" I better!" I reply. 

Why?
to me scars are the tattoos of adventure
and I think I want the scar to show because I have so many injuries that do not visibly show so people are not as careful with me as I sometimes may need them to be.
I think this is true for most people.

With my ankle I have learned:

1.  some seemingly small injuries can become big problems if they are ignored or overlooked. I did not actually ignore this injury. I had my chiropractor adjusting it, I had mentioned it to doctors, but merely mentioned it, and it was overlooked because the head was much more pressing. I also tried to build it back carefully thinking it was just a sprain, and being a runner I knew plenty of ankle strengthening exercises so I had (according to all three orthopedic surgeons who looked at it) really good stability for the injury. But it was overlooked, misdiagnosed by me at the very beginning when it maybe could have healed without surgery, had I been booted. 
2. When your head is a mess you overlook many things. And you behave strange
3. Many variables effect why things like this get missed 
4. It does not mean every little thing needs to be addressed immediately, but it suggests that balance is tricky (especially with a rattled/broken brain and injured ankle :)
5. I got way better at riding switch (using your non dominant food as your lead while snowboarding) because of it; good things can come from injuries
6. sometimes things need to get worse and you have to make decisions to actually allow or make it worse in order for real healing, improvement, and/or growth to happen.

so the ankle is recovering in my eternity of no weight bearing.

I do not know what to do with myself when I grow up again. 

that is tricky

 today I was struggling to get out of bed and face my fears and continue to cause those problems I need to cause in order to keep my other healing and growth going... In order to face reality and break the cycles of fantasy and my broken heart. 

My body wanted to just keep sleeping away my troubled thoughts. But I knew by doing so I would be feeding a very negative and extremely counterproductive sleeping pattern/ routine that becomes harder and harder to break the longer you let it go. It is hard to force yourself to get out of bed when you have such limited mobility, nothing that you have too do, and crap you don't want to face. So I turned on the TV.  I chose to do this and allowed myself to do this, to help tease my brain and body out of sleep and bed. It was a little thing, but it was doing something. 

Turned out to be a great motivator as I "stuck around" to hear the story of a the Maslin's on Good Morning America https://www.today.com/video/how-a-married-couple-rebuilt-their-lives-after-a-tragic-crime-1455671875774  

There are so many great lessons learned in this short clip. And I absolutely love how Abby explains that at the beginning she thought this was a journey about brain injury but she came to realize that this was really a "journey and a story of the human struggle."

Brain injuries and all troubles have a bright side. Mania can me fun, depression can give you depth and complexity, neuroplasticity helps you make connections that other people don't even know exist, anxiety can give you drive, and it can keep you safe, guilt can cause you to think before you act and to think of others... Obviously too much of these is no bueno, but they are not all bad. 

Maybe this is why I liked this article so much:

https://jimkwik.com/kwik-brain-095-how-to-get-out-of-your-own-way-with-todd-herman/

I love the idea of utilizing our own alter egos. I like how they embrace the idea that our identity is constantly changing. Identity is fluid and dynamic not static and unchangeable. 

I love this guy Jim Kwik's story. My sister shared a link to his story, I'll share the link on it's own blog entry because it deserves it's own attention. 

But the point I will end on here is that life is so very strange and timing and things may or may not actually be "for a reason," it may all just be coincidence but sometimes I doubt it.

And other times I think it is just plain helpful and exciting to find so many things aligning that seem to point us in certain directions. 

Other times I think it can be very healthy to give it all a reason and meaning. It can keep life, fun, interesting and meaningful. 

I don't always understand the reasons, and maybe my brain takes things a bit too far. Maybe at times I have a hard time distinguishing reality from fantasy but maybe I am not so far off and maybe imagination is an excellent tool for not only surviving but thriving. :)

Maybe fantasy is the reality that makes life worth living. 

"I love my beautiful crazy life." I tell the mountains as I remembered my blog I had forgotten for years amidst a flooding or memories that had been suppressed, when new me was trying to process the pain and strength of my heart where JP had taken root. 

...Yep, I really love JP, it's one of the best lifts at our resort 

How to survive TBI

The thing about TBI is there are so many degrees and variables. Some recent information I have found suggests that the degree of recovery and lasting effects may be directly related to the amount of social and psychological support the person has.

... At 12 I was pretty screwed. While I had a lot better support than many people in the world, and I love and appreciate my parents, they had pretty screwed up thinking patterns and psychology from their own traumatic life experiences so it was not exactly in line with what a person needs when recovering from TBI.


Maybe that is why I really liked this article I found:


https://www.brainline.org/article/lost-found-what-brain-injury-survivors-want-you-know#comment-44708


I especially wish my parents had understood this one about me when I was a teen:

"We need cheerleaders now, as we start over, just like children do when they are growing up. Please help me and encourage all efforts. Please don’t be negative or critical. I am doing the best I can."

[I was really screwed on that one because Negative and Critical are my parents' middle names]




That and the stuff about sleeping. I got raked over the coals a lot about sleeping too much and being lazy.

...which is really stupid now that I think about it because in high school I was on the cross country, track and swim teams. Regularly placing, #1 for girls in distance running -holding at least 3 school records. I was on the yearbook staff, I was active in my church activities, I participated in student counsels, I was in the honor society and usually held at least one job.

...sigh... reprocessing


maybe I am not so worthless. ...although I was battling serious depression, mood stability and suicidal thoughts then.

some reliving there.

...But I have made huge progress. I do have much more ground now than I did then.

.... and yet so much less at the same time as my life and prospects grow ever shorter and ever stranger.


40 is possibly my weirdest year yet.

and for some strange reason I find this encouraging.