One of my writings is up on my computer, not sure why. It is dated Dec. 11, 2018 and I wrote it while we were on the flight to Italy. I am not sure if I would have been still considered manic at that time.
What I wrote is logical and makes sense. I understood the situation I was in very well, it seems. It even seems I was more logical and rational about it then. And I wonder how that was even possible because I know I had been manic and things, at least in my mind, had gotten so crazy.
How is it I was so much more logical and rational when I was in that still somewhat manic phase?
As I read I remember the feeling of needing things addressed then. I remember feeling angry when I finally did get put on a mood stabilizer because, surely, it would have been so much easier if I had been put on something way back in January when I went to Dr. R (Concussion Dr) after returning from Italy, knowing I was not functioning normal and wanting to discuss it but not sure how because I was trying to protect Dr. P. Way back when Dr. R recognized that I needed one but then proceeded down a path that did not make sense to me in giving me the names for 2 PA's at less suitable and fitting practices, and expecting me to make the appointments and follow through with that. I did try by-the-way.
But mostly as I read I vaguely remember something that Dr. She said about how if it is truly mania or bipolar than a person will progressively loose touch with reality. If we were to graph it the mood and mental state would continue on a downward slant if it was, but it would not if a person just experiencing a high time or something else, not bipolar or true mania.
... That is what happened. Even as I was waking up from mania in various phases I was loosing touch with reality and slipping deeper and deeper into depression also. I was fighting hard to keep grounded and fighting hard to stay sane, but it was getting progressively worse and I was definitely working hard to maintain that footing.
It knots my throat up and moistens my eyes.
It has been such a messed up messy mess and such a bizarre fight for survival
Sunday, January 19, 2020
Wednesday, January 15, 2020
the wrong climate for fair weather friends
I'm tired as we are driving back to our Airbnb in Cozumel. I feel a bit forlorn, maybe just because I am tired. I am not thinking about things. I am enjoying this vacation. It is the Christmas and Birthday presents I surprised my husband with. He deserves this vacation, especially considering the shit I have put him through this last year, so I have made it that, vacation for him; committed to letting it be whatever he wants. And mostly I have done well with that.
...but tonight, with 3 nights left I feel a touch sad. This alternate reality is going to end and I feel a little lost.
... I think about what I am going to do when I get home and
I think I have lost myself.
I wonder who I am.
Then my husband says something about staying here and how it is so much less lonely here. I feel that too and I am glad I am not the only one, but I also know I would probably have the same problems here.
I apologize to my husband for not being able to keep friends and he says rather quickly and bluntly that they are all ... not going to repeat his choice of words but it made me cry ... probably with gratitude that he does not blame me and he appreciates me. It also makes me cry because I don't want to go home to the cold state that I live in. I don't belong there.
...but then again
Where do I belong?
and who am I?
I am lost.
and yet I am not sure a person can be lost if they never really belonged anywhere.
So I am not sure I have ever really known who I am in this moment.
I thought I had it. For a brief moment in time I thought I knew who I was and I was finding me...
...but then it was mania.
and then denied by the very people who are supposed to know and the one place in the world that felt safe, calm, and like home to me.
So the denial confused me
it then meant I was the forbidden fantasy of the very person I needed most.
And I did need him
he was helping me find me
...but once again I found myself with
a person I loved and needed not able to handle me.... And I was sure he could... if only he would try.
So I was the forbidden fantasy of the man who was finding me and helping me to see that I could be me, loved, and I could love me.
...but...
in reality I know it is/was not a forbidden fantasy - rather he told me things in a way that left it open to interpretation, implying what he thought might help me but more importantly what would protect himself while getting him out and away from me -from the fantasy he knew he should not have played with, but too late.
so what am I?
A toy?
to my husband now?
to get back at him; my transference that betrayed me? A toy to my husband to try and break free of the those manic meaningful moments where I knew I was no longer my husbands or even my own person but his. These ideas solidly reinforced by too many months and too many games played with my broken mind by the him and the Institute that protects him.
This is what happens when therapists play with their very fragile and vulnerable patients. This is what happens when the people we need, who we love and trust, use us as play things and then discard us.
It is not well and good. It is not fair. It is very very wrong. If it is mistake, play fair and fix it, but they don't. They lie and hide because you are never the only one and you are not so special; it is their game.
And people back at home say shit like "what are you trying to do?"
Well,
I am fighting for my husband.
I am trying to get my head straight
and to set the record straight
and I am also speaking out against a man who played with me
and then made a mess of things when it came to getting the help I needed
or -to cover his ass and tracks- he manipulated me so that I would make a mess of things in trying to get the help I needed.
I am bringing this to light, because if that is what it was, it needs to be brought to light and addressed.
I am trying to set the institution straight
that kept this nonsense going for far too long when I was trusting them to be the medical providers they are supposed to be. When I was begging for help in my oh-so-put-together way while I was so incredibly broken, unstable, and vulnerable but refusing to be that or a victim. When I was crying for help because my brain was and is literally broken and it was being missed and dismissed.
I am speaking up and out against the doctor that messed things up by not ordering tests that would have shown the damage and injury and other anomalies in the first place.
Maybe, had they done their jobs and due diligence Dr. He would not have played with me the way he had. Maybe. but still, he did, and that needs to be addressed.
I am crying out for the misunderstood of mentally ill and the TBI, and the people who genuinely try.
I will not relent.
I cannot
because to loose one's mind is a scary thing and trying to find and/or hold yourself together while going through it is immensely difficult and should not be so discredited and dismissed
especially by those who are supposed to help
and could benefit from that kind of knowledge, experience, and ability to do just that.
That is what I am up to,
my fair weather friends,
this is what I am up to...
...and maybe I am not so lost after all. Maybe I am exactly who I need to be and where I need to be, Maybe I really am finding me.
...but tonight, with 3 nights left I feel a touch sad. This alternate reality is going to end and I feel a little lost.
... I think about what I am going to do when I get home and
I think I have lost myself.
I wonder who I am.
Then my husband says something about staying here and how it is so much less lonely here. I feel that too and I am glad I am not the only one, but I also know I would probably have the same problems here.
I apologize to my husband for not being able to keep friends and he says rather quickly and bluntly that they are all ... not going to repeat his choice of words but it made me cry ... probably with gratitude that he does not blame me and he appreciates me. It also makes me cry because I don't want to go home to the cold state that I live in. I don't belong there.
...but then again
Where do I belong?
and who am I?
I am lost.
and yet I am not sure a person can be lost if they never really belonged anywhere.
So I am not sure I have ever really known who I am in this moment.
I thought I had it. For a brief moment in time I thought I knew who I was and I was finding me...
...but then it was mania.
and then denied by the very people who are supposed to know and the one place in the world that felt safe, calm, and like home to me.
So the denial confused me
it then meant I was the forbidden fantasy of the very person I needed most.
And I did need him
he was helping me find me
...but once again I found myself with
a person I loved and needed not able to handle me.... And I was sure he could... if only he would try.
So I was the forbidden fantasy of the man who was finding me and helping me to see that I could be me, loved, and I could love me.
...but...
in reality I know it is/was not a forbidden fantasy - rather he told me things in a way that left it open to interpretation, implying what he thought might help me but more importantly what would protect himself while getting him out and away from me -from the fantasy he knew he should not have played with, but too late.
so what am I?
A toy?
to my husband now?
to get back at him; my transference that betrayed me? A toy to my husband to try and break free of the those manic meaningful moments where I knew I was no longer my husbands or even my own person but his. These ideas solidly reinforced by too many months and too many games played with my broken mind by the him and the Institute that protects him.
This is what happens when therapists play with their very fragile and vulnerable patients. This is what happens when the people we need, who we love and trust, use us as play things and then discard us.
It is not well and good. It is not fair. It is very very wrong. If it is mistake, play fair and fix it, but they don't. They lie and hide because you are never the only one and you are not so special; it is their game.
And people back at home say shit like "what are you trying to do?"
Well,
I am fighting for my husband.
I am trying to get my head straight
and to set the record straight
and I am also speaking out against a man who played with me
and then made a mess of things when it came to getting the help I needed
or -to cover his ass and tracks- he manipulated me so that I would make a mess of things in trying to get the help I needed.
I am bringing this to light, because if that is what it was, it needs to be brought to light and addressed.
I am trying to set the institution straight
that kept this nonsense going for far too long when I was trusting them to be the medical providers they are supposed to be. When I was begging for help in my oh-so-put-together way while I was so incredibly broken, unstable, and vulnerable but refusing to be that or a victim. When I was crying for help because my brain was and is literally broken and it was being missed and dismissed.
I am speaking up and out against the doctor that messed things up by not ordering tests that would have shown the damage and injury and other anomalies in the first place.
Maybe, had they done their jobs and due diligence Dr. He would not have played with me the way he had. Maybe. but still, he did, and that needs to be addressed.
I am crying out for the misunderstood of mentally ill and the TBI, and the people who genuinely try.
I will not relent.
I cannot
because to loose one's mind is a scary thing and trying to find and/or hold yourself together while going through it is immensely difficult and should not be so discredited and dismissed
especially by those who are supposed to help
and could benefit from that kind of knowledge, experience, and ability to do just that.
That is what I am up to,
my fair weather friends,
this is what I am up to...
...and maybe I am not so lost after all. Maybe I am exactly who I need to be and where I need to be, Maybe I really am finding me.
Friday, January 10, 2020
Silver Linings
Psychiatric PA says, "that is not a good spot for injury" referring to the location of the visible scaring and encephalomalacia. She is also the one who said something about the prolonged mania and bipolar like mood instability being "hard on brains."
BUT
here in Cancun we discovered one advantage to these two trials, tragedies, traumas, or whatever you want call them: when you are in a timeshare style presentation, your brain will inevitably get tired and then the unstable emotions may come out.
AND you can clam having brain damage and not be lying.
So yesterday, during the high pressure sales presentation we were sitting so I was facing a very large sunny window after we had been inundated with information and I felt soooo tired. I was having a hard time keeping my eyes open. Probably the fact that we had started our travels at 2 am the previous day and we were in a foreign country where we were exhorted for significant amounts for auto insurance buy the car company people and speeding by the police, did not help. But as my brain was feeling the exhaustion and my cognitive stamina was wanting I could feel the emotions starting to surface. I felt like crying. For no reason other than I was tired really. But the mental fatigue was making it very difficult for me to pay attention and to follow all of their deals and jargon. The sales kid was starting to get annoyed. I tried to explain I wasn't okay and he decided we should not waste each others time so he gave up and took us to who I am certain is the closer. He starts breaking into his sales spiel. I try to explain that I need to go lay down, he keeps up his talk and I find myself covering my face as crocodile tears start to run uncontrollably down my face. Closer is a bit confused. My husband explains that I am not feeling well and I really need to go lay down. The closer quickly shows us the bottom line deal and excuses because the tears just won't stop. I apologize and we return to our room so I can rest and reset my tired broken brain. It was annoying and silly but at least it got us off the hook rather quickly from feeling obligated to purchase a vacation points system that is way to confusing and we still get to enjoy the all inclusive amenities for the remaining 4 days we are booked here.
BUT
here in Cancun we discovered one advantage to these two trials, tragedies, traumas, or whatever you want call them: when you are in a timeshare style presentation, your brain will inevitably get tired and then the unstable emotions may come out.
AND you can clam having brain damage and not be lying.
So yesterday, during the high pressure sales presentation we were sitting so I was facing a very large sunny window after we had been inundated with information and I felt soooo tired. I was having a hard time keeping my eyes open. Probably the fact that we had started our travels at 2 am the previous day and we were in a foreign country where we were exhorted for significant amounts for auto insurance buy the car company people and speeding by the police, did not help. But as my brain was feeling the exhaustion and my cognitive stamina was wanting I could feel the emotions starting to surface. I felt like crying. For no reason other than I was tired really. But the mental fatigue was making it very difficult for me to pay attention and to follow all of their deals and jargon. The sales kid was starting to get annoyed. I tried to explain I wasn't okay and he decided we should not waste each others time so he gave up and took us to who I am certain is the closer. He starts breaking into his sales spiel. I try to explain that I need to go lay down, he keeps up his talk and I find myself covering my face as crocodile tears start to run uncontrollably down my face. Closer is a bit confused. My husband explains that I am not feeling well and I really need to go lay down. The closer quickly shows us the bottom line deal and excuses because the tears just won't stop. I apologize and we return to our room so I can rest and reset my tired broken brain. It was annoying and silly but at least it got us off the hook rather quickly from feeling obligated to purchase a vacation points system that is way to confusing and we still get to enjoy the all inclusive amenities for the remaining 4 days we are booked here.
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