TBI, bipolar, transference, countertransference, psychology, medical and psychological malpractice, misconceptions about "mental illnesses," successful mental health practices and being called an "outlier" and "an anomaly" by the "experts" for handling all of this so well while simultaneously being discriminated against for it- You can read about all of that and more on this here blog
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Monday, April 22, 2019
Jim Kwik
My sister sent me a link to this man's story. His name is Jim Kwik and I loved his story.
https://www.youtube.com/watch?feature=youtu.be&v=6jbpn7Xb7pE&app=desktop
I was not as young and I did not have such extreme problems with learning as a youth from my brain injury but I understand the feelings of inadequacy and not measuring up. I understand and relate to being a product of your condition -only my condition was not understood to be a broken brain; from it actually being physically broken, mine was "why are you broken" "what is wrong with you," ignorantly viewed more as character flaws, when they were not. I wonder if this Jim ever felt that way. It is just now, in my reprocessing with the PTSD from the mTBI (concussion), that I am finally able to understand and say with surety that it was not my character that was or is broken, it is my brain. [I suppose that may be what I am actually trying to stand up for in my quest to resolve what I feel so determined to resolve]
I love the story of motivation and determination that leads to an even more brokenness. It is tragic and heartbreaking but it is reality and I that is why I love it. He paints the reality the pitfalls of with belief "if you just believe and work hard." Alone that belief is not sufficient or healthy when you have broken brain. When you are intelligent and have other strengths it is hard for people to know the reality of the struggle as something physical. It is not due to a lake of belief or determination it is actually due to a physical problem.
I love that he reframes his thinking. He acknowledges his weaknesses and decides he needs to adjust his goals. He basically realizes that he needs to work smarter not harder and he decides that the first step to that is learning how to work smarter. I also love the superhero analogy and how he realizes he still has powers he can tap into despite his brokenness, he just needs to learn a new or different how.
TBI is difficult.
You become a different version of yourself and you have to figure what that means, and out how to become a new you you can love and be happy with, how to accept your weaknesses and how to live a happy productive life without that part of you that you once had. It is a physical disability, only people can't see it and it is not one you are really able to talk about. You will be stigmatized and discriminated against if you do and you do not have the same protection as someone with a very visible obvious disability. You will hear things like "you are high functioning" which is fine and true but still stings a little as you can't be sure what is being implied or where the comment is really coming from.
It is a disability that is hidden but that you can't always hide and yet you will work to. It makes no sense and we have these tragic ironies and hypocrisies to handle on top of the problem itself. We are very often very much alone.
So I am loving hearing and seeing more success stories.
I also love this video from Jim Kwik not just for the content but because in it, when he is talking, I can see and hear the subtleties that I recognize are actually coming from his broken brain. I can related to those and I love it because I know he is authentic, he is real, and he actually, really does relate. I love his imperfections in this one.
https://www.youtube.com/watch?v=3tCWngax6WE
Saturday, April 20, 2019
a not-so-straight gait
I'm here to complain today.
but first I have a saying, and my kids hate it, so it must be a good one: "your not allowed to complain about it unless you are willing to do something about it."
but sometimes we complain because we aren't sure what to do about it. or even where to log our complaints. Sometimes we cause bigger problems by complaining... but now I am getting sidetracked into the philosophical unknowns that can turn into black holes
So I'll just complain.
My lower back sucks right now.
Walking again after so long of not and when some part of you is recovering from surgery is so much harder than I realized. Mine was just my ankle. A mere 2-3 inch scar that wraps the ankle bone is all that shows (not entirely true, it's swollen still and my calf muscle on that leg is still skinnier) Yet at 3 weeks able to walk again more things hurt now then did before or immediately after surgery.
My lower back hurts so bad and my heel, ankle, calf and all these muscles and parts of my foot, I didn't even know existed before, hurt. My gait is very off and has been for some time so it's throwing everything else off.
I'm so glad to be able to move again but I am still so limited in what I really can and can't do and it's hard to take it slow...and to not fall into the push crash cycle.
And here we go again, but really,
It's the story of my brain once again mirrored or parallel in some other form that is helping me to understand the life I have long been so confused about.
That stinking broken brain of mine, that was so grossly misunderstood, was throwing off my gait and making it hard to keep things straight.
Push, crash
and other seemingly simple concepts and problems to solve to the professionals become much harder to overcome when they are so deeply ingrained.
And hide.
Hide the symptoms because you are ashamed and you will be judged, or berated.
...or simply things like you won't be allowed to learn how to drive corvettes racing style at the Spring Mountain Motor Resort. Stinking ankle.
...I do wonder if just as the ankle -initial injury was overlooked and misunderstood- needs to get worse before it can get better the brain may also have needed to get worse before it could get better? Needed to be broken again in order to be reset correctly. Man, I hope this reset is better in the long run.
but first I have a saying, and my kids hate it, so it must be a good one: "your not allowed to complain about it unless you are willing to do something about it."
but sometimes we complain because we aren't sure what to do about it. or even where to log our complaints. Sometimes we cause bigger problems by complaining... but now I am getting sidetracked into the philosophical unknowns that can turn into black holes
So I'll just complain.
My lower back sucks right now.
Walking again after so long of not and when some part of you is recovering from surgery is so much harder than I realized. Mine was just my ankle. A mere 2-3 inch scar that wraps the ankle bone is all that shows (not entirely true, it's swollen still and my calf muscle on that leg is still skinnier) Yet at 3 weeks able to walk again more things hurt now then did before or immediately after surgery.
My lower back hurts so bad and my heel, ankle, calf and all these muscles and parts of my foot, I didn't even know existed before, hurt. My gait is very off and has been for some time so it's throwing everything else off.
I'm so glad to be able to move again but I am still so limited in what I really can and can't do and it's hard to take it slow...and to not fall into the push crash cycle.
And here we go again, but really,
It's the story of my brain once again mirrored or parallel in some other form that is helping me to understand the life I have long been so confused about.
That stinking broken brain of mine, that was so grossly misunderstood, was throwing off my gait and making it hard to keep things straight.
Push, crash
and other seemingly simple concepts and problems to solve to the professionals become much harder to overcome when they are so deeply ingrained.
And hide.
Hide the symptoms because you are ashamed and you will be judged, or berated.
...or simply things like you won't be allowed to learn how to drive corvettes racing style at the Spring Mountain Motor Resort. Stinking ankle.
...I do wonder if just as the ankle -initial injury was overlooked and misunderstood- needs to get worse before it can get better the brain may also have needed to get worse before it could get better? Needed to be broken again in order to be reset correctly. Man, I hope this reset is better in the long run.
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