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Wednesday, January 23, 2019

Yes, I have brain damage

I don't like that so much of the information I find about brain injuries and personality problems after the brain injury come from the family members or "caretakers." Very little comes from the person themselves unless it is a dramatic success story usually from someone with immense emotional support and that obtained their injury after they had established themselves as a successful adult. There also seems to be a lack of information on less dramatic events that leave people with brain damage but not so severe that is immediately visible. My intelligence is both a blessing and curse in that regard. The fact that I was 12 and in school means that some cognitive rehabilitation was automatically happening but with out the appropriate guidance and understanding. No one seemed to question my mood instability since I was a teenager and "that just happens with teens, especially teen girls."
Though the injury happened in January and track was in spring I was not allowed to run that year. I had been looking forward to joining the track team since the previous year when I had run at the track with my older sister who was on her high school track team so I expressed anger and annoyance about it. But at the same time I was secretly relieved because I was still so tired and really didn't have the mental energy for it.
That summer I don't remember feeling so much mental fatigue anymore but that is when I started to have fallouts with friends. or maybe it was the next year. I am not entirely sure and I don't remember much of 8th grade. It was rough. Ninth was better but still friendships were always a struggle. It wasn't that I fought or was angry, though at times I was, I just seemed to take things very personally. I don't really want to reanalyze all that as I don't feel that reliving the pain of those years is all that beneficial and it is so difficult to understand because teens years are just rough anyway. I watch my kids going through their teen years and I am sure I am making overcompensation mistakes so I suppose it is good to be aware of what was really happening
...and this what has lead me to reanalyze my life with a more full acceptance of the fact that I have brain damage.
I have never fully accepted that and it is something that is very hard to admit. It is shameful and the stigmas attached are... undefinable. I have not been able to accept diagnoses of mental illness either, because I am not that but I also do not like feeling like I am the burden of a TBI caregiver which seems to be the vast majority of the information out there.
 I want to understand what is wrong with my brain, how to adapt and how to mover forward. Only this time I'd rather it not take a lifetime like it did before.
There is so much more to me and, yes, there are many other variables that have led to my current state of ...interesting, but I need to reframe my life with the understanding of how that traumatic brain altering occasion effected it.
It is not an easy task. I've already burned down one therapist and after 3 appointments know that this 3rd therapist in not quite equipped to handle me. I still have a 3rd appointment to attend to with the 2nd therapist and he may just work since he can relate to the brain injury component... But then there is the part of me that just wants to step away from all of their crazy and just breath for a moment. Just breath and allow myself to recenter in my own thoughts and see where I end up as I write this all out.

It is funny, I found a college level psychology text book on our living room floor this morning and as I picked it up I wondered which child of mine took it off the shelf and why. I wondered if this had been my text book from college, my husbands, or just a random book I had picked up somewhere years ago because I am kind of a nerd like that. It has no highlighter marks or notes on pages so it is not likely my book from college. It is a curious time to find it.
As I look through it I find information about"Neuroscience and encoding," the processes of encoding, and of memory storage. This snippet is interesting to me: "The processes of encoding are also affected by preconceived biases people have; humans tend to notice and encode information that confirms beliefs that they already hold-a tendency called confirmation bias. This tendency to 'see what you expect to see' is a powerful force in allowing people to retain inaccurate beliefs."
It is also interesting that the left frontal cortex is said to be used more in the encoding of new information. This was an area I exhibited problems on the neuropsychological test taken this last year. It also happens to be where my brain bleed was when I was 12. I can analyze my thinking and see how I have used different parts of my brain and different strategies to help me with this function. I do have a hard time paying attention to new information and I find that writing it down helps encode it even if I never look at the written down information again. I also repeat. Parrot. I try to connect new information with something I already know and often I will respond with comments that make it seem like I understand the new information better than I do. Sometimes the act of allowing an off the cuff or intuitive response is what starts the processing of information. It is an interesting phenomena to me as I am just now becoming aware of these tendencies that may be or have been the sources of some relationship troubles for me. It also explains the reprocessing that, to others, may seem counter-productive. At times it very much is and I do need to be careful of that but it is a way that I believe my brain learned to compensate for a missing piece. It can also lead me to pick up on deeper level understanding and connections that are often missed.
I am finding my brain to be a fascinating place and I am enjoying learning more about it.
People will not easily understand what they perceive as me being "stuck" on my old therapist, but I get that he is only one component of a very complicated puzzle and he was the one who woke me up to how I was "stuck" in my reality.
So in our out, it seems I am or have been "stuck."
Trying to figure out the way out is tricky
But I am and I will.

Tuesday, January 22, 2019

The Jesus Man

At 18 I spent the night in the waiting room of a mental health facility in Florida. I was living with my sister at the time. A friend, who also happened to be a boy, came out for a visit. I invited every friend to visit. He actually took me up on the offer, but then acted like an ass while he was there. I was hurt. Florida was a hard place for me to make friends. I didn't party and I was not interested in sugar daddies or being a trophy so it probably stung a little more than it would have anywhere else.
I had gotten a speeding ticket while he was there and then a day or two after he left I got pulled over again. As the police officer proceeded to give me a ticket, I made an off the cuff comment about wanting to borrow his gun so I could take care of the problem.
That was a really stupid thing to say.
It took me a bit and some "discussion" with the officer to realize he wasn't sure if I had just made a threat on his life or mine.
When he realized I had made a threat on my life he insisted that I give him a family members phone number as he felt the responsible thing to do was to release me to one of them.
I was late for work and I did not want to bother, worry, or embarrass my sister or anyone so I was not very cooperative.
I simply refused and tried to convince him to let me go because I really had no intention of doing any harm to myself. Yet I would not deny that I might like to... not be alive.
Damned honest core.
It took him putting me in hand cuffs before I realized he intended to make good on his threat and take me in to be evaluated by a psychiatrist if I would not cooperate. I finally decided to give him my sisters #.
But alas, it was too late.
So off I went; hand cuffed in the back of his police car to the 45th Street Mental Health something or other in Rivera Beach maybe, Florida. I was being "Baker acted." It was some law in Florida that said you could be detained against your will if somebody felt you were a threat to yourself. Too bad I didn't know about that law beforehand. High school and drivers ed had taught me nothing about that.
I only had to wait until the next morning for the psychiatrist that would evaluate me. It was a late Saturday afternoon, evaluating staff had gone for the day, and the next day was Easter. Thus those of us being "Baker acted" had to wait an extra hour or two in the morning so the psychiatrist could attend her Easter services.
Fortunately my sister brought me a change of clothes because I was appropriately dressed -for my job at Wet Seal in the Palm Beach Gardens Mall- in a very short shiny blue skirt and a Sheera print t-shirt with cute white go-go boots. I was not allowed to wear my belt or have shoe laces.
I don't remember how the blankets and pillows worked but I was given somethings to sleep with. Problem was there was only one room with two stretcher like beds and the benches in the waiting room. The two beds had already been claimed but I didn't really care because I would not have wanted to sleep in the closed room with some strange person when the night watch was at the desk on the other side of that door. Didn't matter to me that it was a flap door (I can't remember what those are really called).
There was also a padded room in the hall on the way to the bathroom. I wished that I could sleep in there but they would only have let me if I also needed to be restrained in a straight jacket... I kind of longed for it, but I would not admit that to them.
There were 3 men, one other woman (who was very strange), and the night guard there. Two of the men were approachable. One was there because his mom had called the cops on him for trying to break into his house to get his stuff, or because he had nowhere to stay, or something like that. He claimed she did it out of malice. The other had been in jail and they were trying to put him in a cell with a man that he knew would kill him so he threatened to kill himself. Both were actually surprisingly pleasant company and we had funny conversations. I was glad they were there too because the lady and the other man did not seem to be entirely all there and I will admit, at 18 and 125 lbs, I was kind of scared of them. I don't remember much about the night watchman/guard. So amidst my company I claimed a hard wooden bench and settled in for the night.
About 3 am I woke up to the talking of a police officer who was bringing in yet another of us psychos. He checked him in and left. The man made his bed on the bench across from me and began to tell his story, though I am not entirely sure who he was telling it to; me, the night guard, just anyone or no-one at all. But I was very awake and listened carefully to how he landed himself in my present company.
At some point that night Jesus had started talking to him. At first it may have been a more generic voice but somewhere along the line it turned into Jesus and Jesus was asking the man to do things. 
In the beginning of his hallucinations, the man seemed to have had been entertaining conversations with the Jesus voice. However, as the "Jesus" started to get more demanding the man started to wish for him to leave him alone. The "Jesus" voice started to tell him to do bad things and was getting increasingly persistent and angry with my companion as he argued that he would not. The man decided to tell his friends to take him to the hospital. At first they didn't listen but as Jesus got more insistent this man got more assertive with his friends as he explained that they needed to take him to the hospital before he hurt somebody. They obliged and then the hospital called the police and they brought him to our fine little facility. 
It was an interesting situation I was in and I wondered if I should feel more scared then I did.
This man was fascinating to me and I would reflect on his story for years to come. It bewildered me how he could think this voice was Jesus, but to him it was, and I admired the man for being able to discern right from wrong even when he believed it was Jesus himself telling him to do the "bad" things. I was impressed that he had learned how to keep himself in check. Because of that self control he became a source of inspiration for me and valuable educator. I knew if this man, who walked and talked with a very bad Jesus, could keep himself in check, with one foot firmly planted in reality, and knowing when to get help, then I could too.
And I have.
He really is a personal hero of mine and I wish I could thank him for it, but he was the first one to be taken from the waiting room the next morning and I never saw him again. I am not certain if I ever saw his face at all as I can only vaguely remember watching the back of him as he followed his escort, while trying to keep his baggy belt-less pants up, from the waiting room and into the unknown quarters beyond. 

Sunday, January 20, 2019

Lovely Little Lab Rat

When I struggled with friends in high school my mom used to tell me that I was a very intense person that I had a very intense personality and that not everyone could handle that kind of intensity.
She said this to help me understand and to comfort me.
A couple of years later this came up in conversation with a boyfriend. He thought it was a terrible thing to say. I thought about this from his perspective.
Maybe.
Maybe it was not as helpful as I thought. Maybe it justified intensities that didn't need to be. Or maybe it planted the idea and fed that. Maybe it was a genuine put down.
I don't know.
But I do not think of it as good or bad but rather just a thing. I used it for what I needed it to be when I needed it.
Is that good or bad?
Labels are interesting. "Good" and "bad" are labels and both judgements.
It is funny how we often consider someone judgmental if we disapprove of or disagree with their judgment, or if we feel it is a negative judgement. Yet we do not call the "good" judging. But it is/can be. If you say "that is a good person," you have just judged them. And, well, who are you to judge?
So I ramble into my next thoughts of my conspiracy theory.
"he may have been playing with fire" says the new therapist of the old therapist. I was still in my protect him frame of mind.
That broke and I awoke when it was implied that I have been stalking.
Why had I been so concerned about protecting him from getting into trouble on my account when I had done nothing wrong?
The power of suggestion?
What is it that this is and what does it need to be?
Was it simply that emotions caught him off guard and he panicked? Was it that he genuinely had developed feelings for me and he panicked due to inappropriate protocols and or stigmas attached? Was it misunderstandings and misconceptions of me or something I said because he was emotionally vulnerable, and I crazy? Was it counter-transference in some form he did not want to talk about? Was it a power struggle to him? Was it an "oh shit, she's one of those" moments but then failed to tell what he thought I was?
Or was it something more diabolical?
Experimenting
Dabbling in the dark arts of psychology
And I was his test subject
his unsuspecting victim?
On paper, I am the perfect target.
...and sadly there is evidence that points to that.
But is that what it is or am I still just trying to understand the what-it-is-that-it-was or how to let it be what it needs to be.
I am not sure.
But one thing I am sure of, is that his expectations of me to just walk away from everything and forget were so completely unrealistic and really unfair, even if he did not want to treat me, someone there should have been looking out for me. It is actually their obligation.
So why the manipulation? Why the games of neither confirming nor denying? And why did no one stop and say "this girl is not in a safe mental place and this is harming or will harm her?" That is, after all, their profession.
So withdrawal then looks like a red-zone defense mechanism.