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Friday, January 10, 2020

Silver Linings

Psychiatric PA says, "that is not a good spot for injury" referring to the location of the visible scaring and encephalomalacia. She is also the one who said something about the prolonged mania and bipolar  like mood instability being "hard on brains."
BUT
here in Cancun we discovered one advantage to these two trials, tragedies, traumas, or whatever you want call them: when you are in a timeshare style presentation, your brain will inevitably get tired and then the unstable emotions may come out.
AND you can clam having brain damage and not be lying.
So yesterday, during the high pressure sales presentation we were sitting so I was facing a very large sunny window after we had been inundated with information and I felt soooo tired. I was having a hard time keeping my eyes open. Probably the fact that we had started our travels at 2 am the previous day and we were in a foreign country where we were exhorted for significant amounts for auto insurance buy the car company people and speeding by the police, did not help. But as my brain was feeling the exhaustion and my cognitive stamina was wanting I could feel the emotions starting to surface. I felt like crying. For no reason other than I was tired really. But the mental fatigue was making it very difficult for me to pay attention and to follow all of their deals and jargon. The sales kid was starting to get annoyed. I tried to explain I wasn't okay and he decided we should not waste each others time so he gave up and took us to who I am certain is the closer. He starts breaking into his sales spiel. I try to explain that I need to go lay down, he keeps up his talk and I find myself covering my face as crocodile tears start to run uncontrollably down my face. Closer is a bit confused. My husband explains that I am not feeling well and I really need to go lay down. The closer quickly shows us the bottom line deal and excuses because the tears just won't stop. I apologize and we return to our room so I can rest and reset my tired broken brain. It was annoying and silly but at least it got us off the hook rather quickly from feeling obligated to purchase a vacation points system that is way to confusing and we still get to enjoy the all inclusive amenities for the remaining 4 days we are booked here.

Tuesday, January 7, 2020

How to temper the temper.

I got to see Dr. She today. I needed this appointment. She is glad I had the MRI's and I am getting some answers. She wants me to continue down the rabbit hole and that is so funny to me that she says it that way because the "friend" that was claiming to help and be there but ultimately is too scared to stand up for me in reality and legalities, accused me of thinking myself into a rabbit hole. I tried to explain that it was really more the other way around. In mania and PTSD and what ever was going on with my head and Dr. P, the rabbit hole got me and I have actually been trying to think myself out of it.  Old "friend" psychologically would like to still be the hero, so he finds ways to blame me to relieve himself of the guilt of misleading when he really does not want to be involved, so he says, "that is just what you have to tell yourself to feel good about what you are doing."
Really, what a jerk thing to say. and the bipolar brain damaged part of me wants to unleash and explode they way my body caves to and the way I rightfully could given my ailments or conditions. It can be hard to refrain, sometimes even harder when medicated because then you really know just how big of a jerk they other person is being and since you aren't having to work so damn hard to keep yourself together and all your emotions contained sometimes the emotions sneak out because you have been able to relax some.
So it is very funny to me that Dr. She who is very knowledgable, experienced and qualified is telling me to continue on chasing through this rabbit hole.
At a different point I tell her I feel like lashing out at friends (like the above mentioned.) I ask her permission or her thoughts.
I love that she points out the location and types of injuries as evidenced by my MRI's and lets me know that my lashing out and/or wanting to actually corresponds to my injuries. It is an expected behavior. She says more, and in much more intelligent ways than I can't reiterate, and I wish I could reiterate better (another difficulty for me due to the locations of injuries) because it is so funny and validating.
But as I push for her permission, she reminds me of the realities of why I am asking and why I resist lashing out. She advises. And that is exactly what I need at times. It is very helpful when those urges become so overwhelming. This is also another way I have learned to cope and handle my disabilities and intensities. I ask for help. I ask for permission and I have worked hard to resist urges that may be damaging. At times, if I can frame it in this way, I can hold off an exploding, until I have been granted permission. And permission is usually not given but conversation allows for some outlet of the pressure and often I can avoid an explosion altogether. People likely don't realize how much permission I really ask for and I am certain they do not understand that I am actually asking for permission. I am pretty good at controlling emotions in this way. But not always perfect and my passions come out to bite me in the butt from time to time.
I have noticed it is especially difficult when I am under stress or tired.
That is common for most people I believe, but multiplied and/or heightened for me.
Just like the likelihood of suicide.
It can take a lot of effort to be level and "normal" when your regulators are damaged.
Like I have said before, sometimes I want to show people just how big of a pain in the ass I have not been. But I mostly resist.
Your Welcome.
Love,
Me

Monday, January 6, 2020

bad games.

It's a game to him.
It is a game to them.
I am so mad right now because it was just a game to them.
I was a game.
They treated me like I was there playing games.
My head hurts
my heart hurts
my head hurts
and I am mad
I am mad
it does not disappear
the pain in my head
the ringing in my ear
the mood instability
this is not a game to me
and this is not fun
I am paying for them to have played with me
to lie
and play stupid games
for my money?
 for their egos?
They did not look or try to figure out what was going on with my head
they just wanted me dead
I hate you
I hate you
I hate you
...and it replays
every time my head starts to hurt
it replays and I know
he was playing with me
a toy
that is all I was
a toy
and he gets to decided, he holds all the cards
and he can manipulate it to be what ever he wants
he's covered his ass
he covers his tracks
and he tried to turn me into a stalker
he lied
about me
to protect himself
and lied to me
so I would protect him too.
and I could not say what was happening with me because #1 I trusted him and he took things the direction he took. He steered away from conversation about what was physiologically and psychologically happening to me and turned it into a transference countertransference issue #2 He said he could get into trouble because of me, he could loose his license so I could not speak because I did not want that to happen to him. I cared. I loved him and he fed those feelings, used them, manipulated me in them, when I was manic, when I was experiencing PTSD and returning memories, when my brain was damaged and broken.. when it has an extra mass that should not be there....
I am yelling "NO, This is NOT OKAY," to nobody as I relive.
I want it to stop.
like I am in a bad dream. The yelling, I am not sure if I meant to do that or not.
I am just glad no one is around in that moment.
I hate him.
I hate them.
Dr. Reddy who was supposed to be the doctor overseeing. she played games
she would not treat because she believed whatever his lies were...
I hate her.
I hate them.
They are dishonest
I hate the Jodi who lied, misrepresented, and worked to make a case against me when she was supposed to be representing me.
It was all lies
It is all lies
and it is disgusting
and it hurts my head
and it hurts my heart
and they think it is a game
they have no shame.
they are the biggest creepers I have ever met and I thought they were good. I believed them, I trusted them I tried to help them...
they don't want to help people, they want to take advantage. They want easy money.
They are dishonest crooks and they try to criminalize me for speaking up, for speaking out. For expecting them to be what they proclaim themselves to be.
I am a lot of things
 but crazy
 in a bad way
that is they!
This is absolute insanity.
and I hate them. I hate them as my head hurts and my ear rings and my cognitive stamina falls short again.
I hate them as the bad dream replays causing sudden outbursts that echo
and leave bruised knuckles.

Dear People at the Intermountain Neuroscience Institute,
If you are reading this to fight against me, if you're trying to build a legal case against me, if you are trying to turn me into a criminal, then I would like you to know that I will not be quiet about this.
This is NOT OKAY!
https://highlandspringsclinic.org/can-emotional-trauma-cause-brain-damage/

https://www.verywellmind.com/surprising-ways-that-stress-affects-your-brain-2795040

I am not a criminal and I have not made anything up, no slander, no defamation from me. I was not stalking, I repeatedly told you trying to go other places is reliving the trauma.
I will not be quiet about this. I will not be quiet about how I was treated and not treated. I will not be quiet about either your ignorance or your fraudulence.
My brain was broken when I came to you and you broke it even more when I was begging you to listen and to help me.
"there is something pathological to that" says Concussion doctor
"thank you for acknowledging that" is my response.
But even still, she does not treat the pathology, she pushes me out with no referral and no assistance though she said she would help me find a new team. She lied and then dismissed and denied, leaving me alone in the pathology of the things they are supposed to understand and know how to treat, adding to the stress and emotional trauma.
Breaking my broken brain even more.
I will NOT be quiet about this.
And then followed by the abuses of a termination letter signed by the lady who yelled at me and threats from a lawyer for talking about what happened there.
You all do hold the cards and if you want to try and turn me into a criminal for seeking help and trying to understand what was going on with my broken head and what was going on with the man you are trying to protect, then so be it.
I will fight back and I will expose you if that is the route you want to continue on.



Sunday, January 5, 2020

...holding back words and tears

...And I want to lash out again. I want to punch garbage cans. I am angry.
....
....and I am scared.
encephalomalacia
is the word running through my head.
and others...
that did not surprise me.
But I suppose I had hoped.
I had hoped that maybe it really was nothing going on with my head
I had hoped that maybe it was just a transference thing that made such a mess of me. Simply that and they were right, it was just me making a big deal out of nothing. 
But then, if nothing had showed and eeg told, then myself I would have loathed
more than I already did. 
So I have the evidence I was hiding from and even trying to hide. Hoping that hiding would make it disappear. Fake it until you make it.
The shaking in my hand. I asked about it then hid it. and allowed it to be brushed off...
I seemed better than I was because I had been through this before
and I did not want to face myself the reality of my injuries. 
My head knew what to do, how to access, and how to stay awake. My body knew how not loose consciousness this time, or at least wake up quick. And my body knew how to not be throwing up sick this time. 
...
"count backwards from 100, by sevens" asks the sports medicine doctor I saw because I could get into him sooner than a neurologist. I try and I can but it is slow and painful. My brain is rerouting and I can feel it.  It is not coming easily and naturally. I am using a different pathway. He says I did good, but I was an elementary school teacher then and those kinds of activities were daily and a particular strong suit of mine. Not a good indicator of injury for me. I made it seem easy for someone with brain injury, though it was not as easy as it had been a couple of weeks prior, before the blow to my head. 
He asks me to repeat some words. They are gone. Completely black in my head. I relax and try to utilize the tricks I have learned. I may have drawn one out without a hint. I don't remember now, but the others for sure, were gone and in that moment it kind of scares me how black and blank my mind is. I felt certain they were gone forever. But he gives a hint and magically the second word appears, but I am not sure how. This is not how my brain usually works. The last word, he gives another hint,  and there it is magically appearing from the black blank void that is happening inside of me. It is there and I can say it but I am did not picture it first, the way I usually do. He says I am doing well. Labels it a concussion. But I know I did not do well. I know he is deceived by my ability, my ability that appears stronger than it is because I have experience with this. I have been here before. It is a strange feeling and the black blank void scares me.
PTSD?
Muscle memory?
I don't know. 
But scary.
because I know the long haul
and I know
I am injured.
I know, even though I don't yet because I had not faced it or learned about it, but still I know the damage and the troubles a TBI can cause... because I have lived it. In ignorance and denial, not just by me alone but by family and those who had power and authority over me.  
...Sports medicine guy; he is the second doctor to downplay and dismiss, to avoid ordering an MRI. An MRI that would have shown what was happening and why. An MRI that would have kept me from returning to soon to the job that fired me... for attendance, memory and anxiety. 
Here and now my feelings are raw again and I feel vulnerable and anxious as I will be waiting months again to get into the "right" people who can help me understand
what is going on with my head...
...
"I am just trying to figure out what is going on with my head and I know I need to stand up for myself but I am not sure what that looks like yet," I tell the facility director that latter will yell at me for asking to be kept in house, to utilize a different neuropsychologist there at the facility I trust and is supposed to have the specialist I need for my mTBI that was maybe not so m


Saturday, January 4, 2020

Cutting Too Deep.

I take a break from changing out bookshelves as I read about "Deadly Emotions" and I realize that I really do not hate. The description of hate does not match me nor what I feel. Or is it that I feel guilty for hating? No, I do not feel it the way it is described.
So I contemplate, "what is it that I am actually feeling?"
Hurt.
Hurt and sadness.
also confusion; should I believe the messages received?
Anger is necessary -though it too can be considered a toxic emotion- but it is necessary in order to counter those messages received... to keep me alive.
I am at greater risk for suicide because of TBI. I am at greater risk for suicide because of how my brother died. I am at greater risk of suicide because of the bipolar side.
Bipolar was manifesting itself then.
the book about deadly emotions talks about love and how being in love can effect the brain the same way drugs can. It names similar symptoms... it also sounds like mania: euphoria, no need for sleep or food...
Is this why he could not see the mania in me? Because I loved him? He was my drug?
Was I like a drug to him?
or was I simply a toy
and a game
and flattery to his ego
so he labeled it as such, maybe calling me addicted to being in love since I openly stated that I fall in love all the time, though it was not to be taken that way, worded unwise in my state of compromised.
But whether it was the drug of love, TBI, or effects from the other things going on with my brain then, one thing I am certain of: he knew better than I did what he was doing and the mistakes he made. And he held all of the cards.
He can manipulate it however he wants. He knows the industry, he knows psychology and he knows TBI.
It hurts my heart
again and deep
that he and they likely and very literally would rather I die than admit he/they made a mistake or even to simply clarify.
Hurt.
Not hate.
Hurt.
High risk for suicide
coming from at least three sides
Fighting for my life was not a lie
I know the symptoms. I know the reality. I know how and when to hide it. I know how it can hit and take a person before they even realize what they are doing if they are not aware and on constant guard when that is the ailment that plagues you.
Suicide denied.
I fight.
and I will keep fighting
because they lie
to push me to die...
They know better and if they do not then they need to. They are supposed to be the professionals. They are supposed to be the Hipocratic oath takers. They are trusted and turned to. They are paid for their expertise and help. They are the specialists, trusted and admired.
Hits.
Still taking them
The more I learn the more it helps me, yet in the light of these events the sword has another edge that hits with the knowledge that is power; thus the more I learn the more cuts I take and the more it hurts.
Ignorance may be bliss for some
but not to a broken, bipolar brain that doesn't quite work the same
...and was manipulated to take the blame.




high rates of suicide in people with TBI

The more I learn about TBI's the better I understand myself and the more valid I feel.
But I also feel increasingly more angry at the Intermountain Neuroscience Institute the more I learn about TBI.
Like "3 times more likely to commit suicide."
Freaking Jackasses
Such reckless endangerment
and how intentional was and is it?
I am so very angry with how stupid they are or how fraudulent or that they just didn't care for me and so then encouraged suicide.
I am so very angry
so very very angry.
I could be such a valuable asset to them
but instead they would rather let me and even encourage my death.
I hate them.
I hate them because I loved them
and I trusted them.
I hate them because I needed them, if they really are the experts and not frauds.
I will not back down.
I will not back down until they listen.  I will not back down until I am heard, understood, and credited, until they apologize, until they acknowledge and fix the mistakes they have made. Until they make appropriate changes
Or until the entire institution is dissolved.
THIS IS MY FIGHT!!!!!!!
And I will fight